Introduction: Caregivers are crucial providers of lifelong care for mentally retarded children due to their specific disability, and their rehabilitation training and living standards are closely related to caregivers’ quality of life. Therefore, this study selected S District of Chongqing to conduct a cross-sectional study on the quality of life of caregivers of mentally retarded children. Methodology: The study was conducted at three specialized rehabilitation centers in Chongqing, China, using Basic Information Questionnaire and Generic Quality of Life Inventory-74 for caregivers of mentally retarded children, and the study sample included 112 caregivers of mentally retarded children and 104 normal children’s caregivers. Results: The caregivers of mentally retarded children have higher scores than those of normal children. There are significant differences among them in the quality of life and in material condition caused by family annual income, in material condition caused by home address, in social function caused by father’s occupation, and in material condition and in psychological function caused by father’s education level. Conclusion: The caregivers of mentally retarded children have lower quality of life than those of normal children. Some demographic variables like the annual family income, home address, father’s occupation and father’s education level have effects on caregivers’ quality of life.
Cite this paper
Li, W. , Wang, L. , Peng, Q. , Du, X. and Ma, J. (2020). The Cross-Sectional Study of Quality of Life of Caregivers of Mentally Retarded Children in S District of Chongqing China. Open Access Library Journal, 7, e6986. doi: http://dx.doi.org/10.4236/oalib.1106986.
CCTV Network (2016) China Disabled Persons’ Federation: Over 1.67 Million Disabled Children in China and about 200,000 Newly Added Each Year.
Learning Power Platform (2019) Xi Jinping Made Important Instructions on Civil Affairs.
Li, L.J., Hao, W., Yang, D.S., Zhang, Y.L., Wu, G., Luo, Y.G., Huang, J., Zhang, B., Liu, J.N. and Liao, J.F. (1995) Study on Quality of Life of General Population in Hunan Province: IV. Development of Quality of Life Inventory. Chinese Mental Health Journal, 227-231, 239, 236.
Wang, L., Li, L.J., Jiang, H.B., Yu, J.H., Fang, J. and Yang, D.S. (1997) A Comparative Study on the Quality of Life of the Caregivers of Hypertension Patients. Chinese Journal of Behavioral Medical Science, 4, 265-268.
Rillotta, F., Kirby, N., Shearer, J. and Nettelbeck, T. (2012) Family Quality of Life of Australian Families with a Member with an Intellectual/Developmental Disability. Journal of Intellectual Disability Research, 56, 71-86.
Davis, N.O. and Carter, A.S. (2008) Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics. Journal of Autism and Developmental Disorders, 38, 1278-1291.
Vasilopoulou, E. and Nisbet, J. (2016) The Quality of Life of Parents of Children with Autism Spectrum Disorder: A Systematic Review. Research in Autism Spectrum Disorders, 23, 36-49. https://doi.org/10.1016/j.rasd.2015.11.008
Robinson, S., Hastings, R.P., Weiss, J.A., Pagavathsing, J. and Lunsky, Y. (2018) Self-Compassion and Psychological Distress in Parents of Young People and Adults with Intellectual and Developmental Disabilities. Journal of Applied Research in Intellectual Disabilities, 31, 454-458. https://doi.org/10.1111/jar.12423
Patton, K.A., Ware, R., McPherson, L., Emerson, E. and Lennox, N. (2018) Parent-Related Stress of Male and Female Carers of Adolescents with Intellectual Disabilities and Carers of Children within the General Population: A Cross-Sectional Comparison. Journal of Applied Research in Intellectual Disabilities, 31, 51-61.
Luijkx, J., van der Putten, A.A.J. and Vlaskamp, C. (2017) Time Use of Parents Raising Children with Severe or Profound Intellectual and Multiple Disabilities. Child: Care, Health and Development, 43, 518-526.
Qian, X.L., Yarnal, C.M. and Almeida, D.M. (2014) Does Leisure Time Moderate or Mediate the Effect of Daily Stress on Positive Affect? An Examination using Eight-Day Diary Data. Journal of Leisure Research, 46, 106-124.
Thomas, M., Hunt, A., Hurley, M., Robertson, S. and Carter, B. (2011) Time-Use Diaries Are Acceptable to Parents with a Disabled Preschool Child and Are Helpful in Understanding Families’ Daily Lives. Child: Care, Health and Development, 37, 168-174. https://doi.org/10.1111/j.1365-2214.2010.01156.x
Ghandour, R.M., Hirai, A.H., Blumberg, S.J., Strickland, B.B. and Kogan, M.D. (2014) Financial and Nonfinancial Burden among Families of CSHCN: Changes between 2001 and 2009-2010. Academic Pediatrics, 14, 92-100.
Masulani-Mwale, C., Kauye, F., Gladstone, M. and Mathanga, D. (2018) Prevalence of Psychological Distress among Parents of Children with Intellectual Disabilities in Malawi. BMC Psychiatry, 18, Article No. 146.
Chou, Y.C. and Kr？ger, T. (2014) Reconciliation of Work and Care among Lone Mothers of Adults with Intellectual Disabilities: The Role and Limits of Care Capital. Health and Social Care in the Community, 22, 439-448.
Chou, Y.C., Kr？ger, T. and Pu, C.Y. (2018). Underemployment among Mothers of Children with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 31, 152-158. https://doi.org/10.1111/jar.12336
Masulani-Mwale, C., Kauye, F., Gladstone, M. and Mathanga, D. (2019) Development of a Psycho-Social Intervention for Reducing Psychological Distress among Parents of Children with Intellectual Disabilities in Malawi. PLoS ONE, 14, e0210855.