%0 Journal Article
%T Role of Theories in the Design of Web-Based Person-Centered Support: A Critical Analysis
%A Agneta Ranerup
%A Carina Sparud-Lundin
%A Ingalill Koinberg
%A Ingela Sk£¿rs£¿ter
%A Margaretha Jenholt-Nolbris
%A Marie Berg
%J International Journal of Chronic Diseases
%D 2014
%R 10.1155/2014/603047
%X Objective. The aim of this study was to provide a critical understanding of the role of theories and their compatibility with a person-centered approach in the design and evaluation of web-based support for the management of chronic illness. Methods. Exploration of web-based support research projects focusing on four cases: (1) preschool children aged 4¨C6 with bladder dysfunction and urogenital malformation; (2) young adults aged 16¨C25 living with mental illness; (3) women with type 1 diabetes who are pregnant or in early motherhood; and (4) women who have undergone surgery for breast cancer. Data comprised interviews with research leaders and documented plans. Analysis was performed by means of a cross-case methodology. Results. The used theories concerned design, learning, health and well-being, or transition. All web support products had been developed using a participatory design (PD). Fundamental to the technology design and evaluation of outcomes were theories focusing on learning and on health and well-being. All theories were compatible with a person-centered approach. However, a notable exception was the relatively collective character of PD and Communities of Practice. Conclusion. Our results illustrate multifaceted ways for theories to be used in the design and evaluation of web-based support. 1. Introduction Increasingly, different types of web-based support are being developed for patients in managing their illness [1¨C6]. It has been argued that efficient support for managing chronic illnesses and conditions should be tailored to each person and his or her needs and preferences. In other words, it should be in line with a ¡°person-centered care¡± philosophy (PCC) [7, 8]. Central to PCC is that the person is highlighted and considered from a broader, holistic perspective than merely in terms of medical status. PCC is based on the patient¡¯s experience of his/her situation being a capable and active person with individual conditions and resources and with efforts to preserve their dignity [8¨C10]. PCC comprises openness and acknowledgement of each person¡¯s perspective and special resources which assist them to be self-reflecting and capable of shared decision making despite health-related limitations. PCC brings attention to partnership, including shared power and responsibility between the person and the professional caregiver, with efforts to actively empower and involve the patient in the care process [7]. With this paper we want to highlight the PCC perspective [7] in web-based technology as utilized in the everyday life of persons with
%U http://www.hindawi.com/journals/ijcd/2014/603047/