%0 Journal Article
%T International Comparison of Thalassemia Registries: Challenges and Opportunities
%A Esmaeil Mehraeen
%A Ghasem Miri Aliabad
%A Marjan Ghazisaeedi
%A Reza Safdari
%A Rosa Conte
%A Tayebeh Noori
%A Yousef Mehdipour
%J Archive of "Acta Informatica Medica".
%D 2019
%R 10.5455/aim.2019.27.58-63
%X Patient registries use standardized methods to systematically gather uniform data for specific groups of patients managed in clinical practice to evaluate specified outcomes
%K Thalassemia
%K Hemoglobinopathy
%K Surveillance
%K Registry
%K Database
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6511274/