%0 Journal Article %T The role of patient organizations in the rare disease ecosystem in India: an interview based study %A Gayatri Saberwal %A Mohua Chakraborty Choudhury %J Archive of "Orphanet Journal of Rare Diseases". %D 2019 %R 10.1186/s13023-019-1093-6 %X The online version of this article (10.1186/s13023-019-1093-6) contains supplementary material, which is available to authorized users %K Rare disease %K Patient group %K Disease-specific group %K Umbrella organization %K Policy %U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6542017/