%0 Journal Article
%T Recommendations for the management of MPS VI: systematic evidence- and consensus-based guidance
%A Andrea Borgo
%A Andrea Jester
%A Andrew McFadyen
%A Bob Stevens
%A Cengiz Karsli
%A Christian Hendriksz
%A Diane Ruschel Marinho
%A Elizabeth Braunlin
%A Hernan Amartino
%A Jane Ashworth
%A Jeffrey I. Gold
%A Jim McGill
%A John J. Mitchell
%A Joseph Muenzer
%A Kenneth I. Berger
%A Kumar Belani
%A MPS Consensus Programme Co-Chairs
%A MPS Consensus Programme Steering Committee
%A Maurizio Scarpa
%A Mehmet Umut Akyol
%A Paul Harmatz
%A Paul J. Orchard
%A Robert Walker
%A Robert Wynn
%A Roberto Giugliani
%A Simon A. Jones
%A Sophie Thomas
%A Torayuki Okuyama
%A Tord D. Alden
%A William Mackenzie
%A Yoshikatsu Eto
%J Archive of "Orphanet Journal of Rare Diseases".
%D 2019
%R 10.1186/s13023-019-1080-y
%X The online version of this article (10.1186/s13023-019-1080-y) contains supplementary material, which is available to authorized users
%K Maroteaux-Lamy syndrome
%K Mucopolysaccharidosis
%K MPS VI
%K Management guidelines
%K Galsulfase
%K Enzyme replacement therapy
%K ERT
%K Haematopoietic stem cell transplantation
%K HSCT
%K Surgery
%K Anaesthetics
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6541999/