%0 Journal Article
%T The DM-scope registry: a rare disease innovative framework bridging the gap between research and medical care
%A Bruno Eymard
%A Cynthia Gagnon
%A C¨Śline Dogan
%A Dalil Hamroun
%A Ferroudja Daidj
%A Guillaume Bassez
%A Jack Puymirat
%A Jean Mathieu
%A Marie De Antonio
%A Sandrine Katsahian
%A the Filnemus Myotonic Dystrophy Study Group
%J Archive of "Orphanet Journal of Rare Diseases".
%D 2019
%R 10.1186/s13023-019-1088-3
%X DM-Scope data processing and quality contro
%K Myotonic dystrophy
%K Rare disease registry
%K Platform
%K Medical care
%K Research
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6547518/