%0 Journal Article
%T ¡°Be an ambassador for change that you would like to see¡±: a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease
%A Aad Tibben
%A Alexandra Breukel
%A Alexandre Mejat
%A Anna Ambrosini
%A Ellen Sterrenburg
%A George Padberg
%A Guus Schrijvers
%A Hanns Lochm¨¹ller
%A Ingeborg Meijer
%A Maarten de Wit
%A Michal Rataj
%A Raffaella Willmann
%A Ros Quinlivan
%A Valeria A. Sansone
%A on behalf of the 235th ENMC workshop study group
%J Archive of "Orphanet Journal of Rare Diseases".
%D 2019
%R 10.1186/s13023-019-1103-8
%X Levels of patient involvement along the participation ladder (A. Ambrosini; modified from [19]
%K Healthcare
%K Patient engagement
%K Patient involvement
%K Neuromuscular diseases
%K Co-creation
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6555994/