%0 Journal Article %T Evaluation of neurofibromatosis type 1 progression using a nationwide registry of patients who submitted claims for medical expense subsidies in Japan between 2008 and 2012 %A Chikako Nishigori %A Hiroyuki Yanagisawa %A Machi Suka %A Takashi Yamauchi %J Archive of "Orphanet Journal of Rare Diseases". %D 2019 %R 10.1186/s13023-019-1148-8 %X The online version of this article (10.1186/s13023-019-1148-8) contains supplementary material, which is available to authorized users %K Intractable rare disease %K Neurofibromatosis type 1 %K Progression %K Follow-up %K National registry %K Medical expense subsidies %K Japan %U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6612089/