%0 Journal Article
%T Analysis of the caregiver burden associated with Sanfilippo syndrome type B: panel recommendations based on qualitative and quantitative data
%A Cara O¡¯Neill
%A Charles Marques Louren£¿o
%A Elsa Shapiro
%A Neslihan Onenli Mungan
%A Nicole Muschol
%A Suresh Vijayaraghavan
%J Archive of "Orphanet Journal of Rare Diseases".
%D 2019
%R 10.1186/s13023-019-1150-1
%X The online version of this article (10.1186/s13023-019-1150-1) contains supplementary material, which is available to authorized users
%K Sanfilippo syndrome
%K Caregiver
%K Burden of disease
%K Quality of life
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6615275/