%0 Journal Article
%T Immune thrombocytopenia: improving quality of life and patient outcomes
%A Patrick Trotter
%A Quentin A Hill
%J Archive of "Patient Related Outcome Measures".
%D 2018
%R 10.2147/PROM.S140932
%X Immune thrombocytopenia (ITP) is an immune-mediated disorder characterized by a reduced platelet count and patients may develop bruising or mucosal bleeding. Since 2003, generic health-related quality of life (HRQoL) measures have been applied and ITP-specific measures developed, alongside trials of novel therapeutic agents. These have identified significant morbidity in patients with ITP, including fatigue, fear of bleeding and a negative impact on role, social and work activities. This review critically evaluates HRQoL data in adults and children with ITP. It also considers the impact of treatment and how patient-reported outcomes might be applied to care to optimize patients¡¯ quality of life
%K immune thrombocytopenia
%K quality of life
%K fatigue
%K eltrombopag
%K romiplostim
%K bleeding
%K SF-36
%K KIT
%K depression
%K ITP-PAQ
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6267629/