%0 Journal Article %T Innovation for rare diseases and bioethical concerns: A thin thread between medical progress and suffering %A Alberto Tommasini %A Andrea Magnolato %A Irene Bruno %J Archive of "World Journal of Clinical Pediatrics". %D 2018 %R 10.5409/wjcp.v7.i3.75 %K X-severe combined immunodeficiency %K Primary immunodeficiency %K Beta thalassemia %K Spinal muscular atrophy %K Bioethics %K History of medicine %K Precision medicine %K Genetics %U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6125142/