%0 Journal Article
%T Home Caregivers Training Program for Amyotrophic Lateral Sclerosis: Insights From a Pilot Project
%A Anabela Pinto
%A Anna Caroline Marques Braga
%J Home Health Care Management & Practice
%@ 1552-6739
%D 2018
%R 10.1177/1084822317753830
%X Amyotrophic lateral sclerosis (ALS) has an uncertain progression timeframe that leading to total dependence of a caregiver. A training program (TP) about home health care for ALS patient caregivers can help to address the burden of care. The feasibility outcome was caregiver¡¯s participation, and the primary outcome was level of learning. We used theoretical and hands-on approaches to training basic skills during 5 days. All participants undertaken to a written exam at the end of TP, and we assessed the methodology used through satisfaction questionnaires. We achieved a good adherence (77 participants) and a successful completion participation (70% approval). Initiatives that meet the needs of caregivers and help the ALS patients to maintain emotional and social link to their community should be part of the disease clinical management
%K multidisciplinary
%K home health care
%K amyotrophic lateral sclerosis
%K training
%K caregivers
%U https://journals.sagepub.com/doi/full/10.1177/1084822317753830