%0 Journal Article
%T Assessing the prevalence of juvenile systemic sclerosis in childhood using administrative claims data from the United States
%A Fenglong Xie
%A Ivan Foeldvari
%A Timothy Beukelman
%J Journal of Scleroderma and Related Disorders
%@ 2397-1991
%D 2018
%R 10.1177/2397198318763701
%X Juvenile systemic sclerosis is a very rare orphan disease. To date, only one publication has estimated the prevalence of juvenile systemic sclerosis using a survey of specialized physicians. We conducted a study of administrative claims data in the United States using the International Classification of Diseases, Ninth Revision diagnosis codes and found a prevalence of approximately 3 per 1,000,000 children. This estimate will inform the planning of prospective studies
%K Prevalence
%K juvenile systemic sclerosis
%U https://journals.sagepub.com/doi/full/10.1177/2397198318763701