%0 Journal Article
%T Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons
%J The Journal of Law, Medicine & Ethics
%@ 1748-720X
%D 2019
%R 10.1177/1073110519840486
%X A medical information commons (MIC) is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we engaged 75 adults in two-day facilitated discussions on the ethical and social issues inherent to sharing data with an MIC. Deliberants made recommendations regarding opt-in consent, transparent data policies, public representation on MIC governing boards, and strict data security and privacy protection. Community engagement is critical to earning the public's trust
%U https://journals.sagepub.com/doi/full/10.1177/1073110519840486