%0 Journal Article
%T Characterizing the Biomedical Data
%A Amy L. McGuire
%A Angela G. Villanueva
%A Barbara A. Koenig
%A Erika Versalovic
%A Mary A. Majumder
%A Patricia A. Deverka
%A Robert Cook-Deegan
%J The Journal of Law, Medicine & Ethics
%@ 1748-720X
%D 2019
%R 10.1177/1073110519840481
%X Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe
%U https://journals.sagepub.com/doi/full/10.1177/1073110519840481