%0 Journal Article
%T Importance of Participant
%J The Journal of Law, Medicine & Ethics
%@ 1748-720X
%D 2019
%R 10.1177/1073110519840480
%X Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community advisory panels across the U.S., we describe features of the evolving medical information commons (MIC). We identify participant-centricity and trustworthiness as the most important features of an MIC and discuss the implications for those seeking to create a sustainable, useful, and widely available collection of linked resources for research and other purposes
%U https://journals.sagepub.com/doi/full/10.1177/1073110519840480