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Journal of Empirical Research on Human Research Ethics

ISSN Print: 1556-2646

ISSN Online: 1556-2654

主页: https://journals.sagepub.com/loi/jrea

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A Rare Opportunity: Examining the Experience of a New Institutional Review Board

Amanda Brown,Linda Parreco,Lisa Rooney,Lori Minasian,Sharon Hampp

Assessing the Efficacy of a Training Intervention to Reduce Acceptance of Questionable Research Practices in Psychology Graduate Students

Donald F. Sacco,Mitch Brown

Exploring Ethical Concerns About Human Challenge Studies: A Qualitative Study of Controlled Human Malaria Infection Study Participants’ Motivations and Attitudes

Devan M. Duenas,James G. Kublin,Kelly J. Shipman,Sean C. Murphy,Seema K. Shah,Stephanie A. Kraft

Measuring IRB Regulatory Compliance: Development, Testing, and Use of the National Cancer Institute StART Tool

Andrea Dedier,Birdena Samuel,Laura Covington,Lisa Rooney

The Psychological Risk of Minimal Risk Activities: A Pre

Derek Vang,Maureen Murdoch,Melissa Ruth Partin,Shannon Marie Kehle-Forbes

Barriers and Facilitators to Obtaining Informed Consent in a Critical Care Pediatric Research Ward in Southern Malawi

Alice Liomba,Kristan Elwell,Lucinda Manda-Taylor,Terrie E. Taylor

Commentary on “Measuring the Quality and Performance of Institutional Review Boards”

Peter Cleaton-Jones

Reviewing Student Research: Can We Consider Bad Science to Be Ethical?

Practical Ethicist

Parents’ Perspectives on Decisions to Participate in Pediatric Clinical Research: Results From a Focus Group Study With Laypeople

Krista Tromp,Suzanne van de Vathorst

Australian Mental Health Consumer and Carer Perspectives on Ethics in Adult Mental Health Research

Alyssa R. Morse,Amelia Gulliver,Bethany A. Jones,Michelle Banfield,Owen Forbes

Variability in Institutional Board Review for a Multisite Assessment of Resident Professionalism

Andrea Cotter,Colleen Canavan,Emily Frosch,James A. Feldman,Jeffrey I. Schneider,Judith A. Linden,Matthew Holtman,Niels D. Martin,Patricia M. Mitchell,Sabrina Drexel

“Stop Talking to People; Talk with Them”: A Qualitative Study of Information Needs and Experiences Among Genetic Research Participants in Pakistan and Denmark

Klaus Hoeyer,Zainab Afshan Sheikh

Attitudes Toward Genetics and Genetic Testing Among Participants in the Jackson and Framingham Heart Studies

Daniel Levy,Deborah E. Sellers,Donna Antoine-LaVigne,Greta Lee Splansky,Katherine W. Saylor,Lynette Ekunwe,Sarah McGraw,Steven Joffe

Of Parachutes and Participant Protection: Moving Beyond Quality to Advance Effective Research Ethics Oversight

Holly A. Taylor,Holly Fernandez Lynch,Michelle N. Meyer,Stuart Nicholls,null

Children in Social Research: Do Higher Payments Encourage Participation in Riskier Studies?

Anne Graham,Bianca Hoban,Jenny Chalmers,Morag McArthur,Stephanie Taplin,Tim Moore

Japanese Students Do See the Value of Asking About Child Abuse and Trauma in the Research Setting

Carolyn B. Allard,Elizabeth Straus,Katie B. Thomas,Mai I. Ra,Reiko Kawamura,Yukari Tosaka

Experts’ Perspectives on Key Ethical Issues Associated With HIV Phylogenetics as Applied in HIV Transmission Dynamics Research

Douglas R. Wassenaar,Farirai Mutenherwa,Tulio de Oliveira

Inclusion of Marginalized Groups and Communities in Global Health Research Priority

Bridget Pratt

Privacy of Clinical Research Subjects: An Integrative Literature Review

Anna-Maija Pietil？,Arja Halkoaho,Mari Kangasniemi,Sanna-Maria Nurmi

Decades of Doing: Indigenous Women Academics Reflect on the Practices of Community

Jaime Cidro,Kim Anderson

The Use of Samples Originating From Doping Control Procedures for Research Purposes: A Qualitative Study

Amicia Phillips,Mahsa Shabani,Pascal Borry,Thijs Devriendt

From Moving Beyond Compliance to Quality to Moving Beyond Quality to Effectiveness: Realities and Challenges

Min-Fu Tsan

Research Ethics Committees’ Oversight of Biomedical Research in South Africa: A Thematic Analysis of Ethical Issues Raised During Ethics Review of Non

Blessing Silaigwana,Douglas Wassenaar

Trolley Dilemmas Fail to Predict Ethical Judgment in a Hypothetical Vaccination Context

Fredrik Andreas Dahl,Gry Oftedal

Genomic Literacy and Awareness of Ethical Guidance for Genomic Research in Sub

Funmilola Taiwo,Lucy Frith,Olubunmi Ogunrin

Measuring the Quality and Performance of Institutional Review Boards

Min-Fu Tsan

The Contribution of Ethics Review to Protection of Human Participants: Comment on “Measuring the Quality and Performance of Institutional Review Boards”

Christine Grady

Whatever Happened to Short Informed Consent Documents?

P. Ethicist

“You Really Do Have to Know the Local Context”: IRB Administrators and Researchers on the Implications of the NIH Single IRB Mandate for Multisite Genomic Studies

Aaron Scrol,Emily Sheffer Serdoz,James D. Ralston,Jeremy J. Corsmo,Nora B. Henrikson,Paula R. Blasi,Sarah M. Greene,Tanya L. Matthews

A Geoprivacy by Design Guideline for Research Campaigns That Use Participatory Sensing Data

Bernd Resch,Ourania Kounadi

Do Research Participants Trust Researchers or Their Institution?

Anton Allen,Doreen Rosenthal,Emma Barnard,Hannah Walker,Lynn Gillam,Marilys Guillemin,Paul Stewart

Frequency and Factors Associated With Honorary Authorship in Indian Biomedical Journals: Analysis of Papers Published From 2012 to 2013

Akash Shah,Anup Bhat,John M. Solomon,Sathish Rajasekaran

Commentary on “A Framework for Community and Stakeholder Engagement: Experiences From a Multicenter Study in Southern Africa”

Catherine M. Slack,Graham Lindegger,Peter A. Newman

Adolescents’ and Parents’ Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year

Ariel M. de Roche,Carmen Radecki Breitkopf,Christine Mauro,Lisa S. Ipp,Marina Catallozzi,Rebecca K. Tsevat,Sara E. Landers,Susan L. Rosenthal

Seeking Ways to Inform the Uninformed: Improving the Informed Consent Process in Online Social Science Research

David M. Keating,Evan K. Perrault

A Framework for Community and Stakeholder Engagement: Experiences From a Multicenter Study in Southern Africa

Moses J. Chimbari,Rosemary Musesengwa,Samson Mukaratirwa

Healthy Volunteers’ Perceptions of the Benefits of Their Participation in Phase I Clinical Trials

Jill A. Fisher,Julianne M. Kalbaugh,Lisa McManus,Marci D. Cottingham,Megan M. Wood,Rebecca L. Walker,Torin Monahan

Impact of a Clinical Trial in Two District Hospitals in Ghana: Perspectives of Ghanaian Researchers

Katie Giessler,Marilyn C. Morris,Patrick T. Wilson

Understanding of International Committee of Medical Journal Editors Authorship Criteria Among Faculty Members of Pharmacy and Other Health Sciences in Jordan

Osama Y. Alshogran,Wael K. Al-Delaimy

Development and Preliminary Testing of the Perceived Benefit and Burden Scales for Cancer Clinical Trial Participation

Christine Grady,Connie M. Ulrich,Gwenyth R. Wallen,Kathleen Knafl,Qiuping (Pearl) Zhou,Sarah J. Ratcliffe,Therese S. Richmond

The Ethics of Health Care Delivery in a Pediatric Malaria Vaccine Trial: The Perspectives of Stakeholders From Ghana and Tanzania

Bernice Elger,Claire Leonie Ward,David Shaw,Evelyn Anane-Sarpong,Marcel Tanner,Osman Sankoh

A Practical Approach to Including Adults Unable to Consent in Research

P. Ethicist

Response to Commentary: Regulatory Support Improves Subsequent IRB Approval Rates in Studies Initially Deemed Not Ready for Review—A CTSA Institution’s Experience

Katherine Bright,Leslie Bell,Patrick Flume,Royce R. Sampson,Stephanie Gentilin,Summer Young,Susan Sonne,Toni Mauney

Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners

Barbara A. Koenig,Carmen Radecki Breitkopf,Deborah R. Gordon,Gloria M. Petersen,Kari G. Chaffee,Marguerite E. Robinson,Noralane M. Lindor,Susan M. Wolf

Misuse of Coauthorship in Medical Theses in Sweden

Gert Helgesson,Josephine Schneider,Michael L？vtrup,Niels Lyn？e,Niklas Juth

Perspectives on Electronic Informed Consent From Patients Underrepresented in Research in the United States: A Focus Group Study

Christian M. Simon,David W. Klein,Eric L. Eisenstein,Gary E. Rosenthal,Helen A. Schartz

Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences

Cynthia A. Prows,Lisa Vaughn,Melanie F. Myers,Melissa DeJonckheere,Michelle L. McGowan,William B. Brinkman

Risk Perceptions for Trauma

Christopher LeGrow,Melissa S. Atkins

South African Research Ethics Committee Review of Standards of Prevention in HIV Vaccine Trial Protocols

Douglas R. Wassenaar,Zaynab Essack

Regulatory Support Improves Subsequent IRB Approval Rates in Studies Initially Deemed Not Ready for Review: A CTSA Institution’s Experience

Katherine Bright,Leslie Bell,Patrick Flume,Royce R. Sampson,Stephanie Gentilin,Summer Young,Susan Sonne,Toni Mauney

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