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Información, autoayuda y creación de identidades: las tecnologías de la información y la comunicación (TIC) y las asociaciones de discapacitados físicos. El ejemplo de la poliomielitis

DOI: 10.1590/S1851-82652011000400005

Keywords: internet, quality indicators, self-help groups, poliomyelitis, postpoliomyelitis syndrome.

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Abstract:

the aim of this paper is to study the quality of the websites of associations for people with polio and post-polio syndrome as an example of an important method for exchanging information and promoting the social visibility of physically disabled people. a descriptive cross-sectional study of 375 sites that met inclusion criteria, found using of the google search engine, was carried out. the quality was studied through 22 variables, 8 of which make up the "credibility indicator". none of the websites met all the quality criteria nor all 8 items in the credibility index. a positive correlation between the variables of quality and credibility criteria (pearson r = 0.81, p<0.001) was observed, therefore the credibility index is suggested as a useful tool for determining the quality of the websites. however, this tool must be supplemented with other qualitative approaches that explore both the contexts of lay-expert relationships and the function these sites serve.

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