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Living with a Chemically Sensitive Wife: A “We” Situation

DOI: 10.5402/2012/285623

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Abstract:

Objectives. Multiple chemical sensitivity (MCS) is a medically unexplained and socially disabling disorder characterized by negative health effects attributed to exposure to common airborne chemicals. How spouses of chemically sensitive women experience and cope with their partners illness has not been described previously. Methods. This study presents data from three semistructured focus group interviews with a selective sample of 13 men whose spouses had MCS. Data was analyzed using systematic text condensation with a special focus on coping. Results. The informants expressed a great concern for their wives and described their role in the relationship as that of a “watchdog”, always alert and ready to protect. A considerable amount of time and effort was thus given to avoid symptom-eliciting chemicals to prevent illness. Informing guests of restrictions and observing neighbours’ daily routines were common occurrences. Masks, installation of additional air filters in cars and houses, and other protective measures had necessitated several participants taking on extra work to alleviate the economic burden. The wives' illness had thus become a “we” situation. Discussion. In conclusion, MCS was perceived as a “we” situation and may thus impose considerable strain on the relationship and the family as a whole. 1. Introduction Multiple chemical sensitivity (MCS) is a medically unexplained and socially disabling disorder characterized by negative health effects attributed to exposure to common airborne chemicals, for example, fragranced products, tobacco smoke, freshly printed papers or magazines, or new furniture [1]. Symptoms are generally attributed to previous chemical exposures and recur on a subsequent exposure to the same or structurally unrelated chemicals at levels normally considered to be nontoxic [1]. The reported symptoms typically vary between individuals with women being more sensitive and reporting more symptoms than men do [2–5]. A typical symptom pattern is thus difficult to establish. However, nonspecific central nervous system (CNS) complaints are frequently reported including fatigue, headache, and difficulty in concentrating [2, 3]. Other symptoms include pain and respiratory complaints [2, 3]. More theories have been proposed to explain MCS, biological as well as psychological [1, 6], but the pathophysiology is still poorly understood. MCS is one of many terms used to describe this disorder and will, without reference to any assumptions about aetiology, be used here. The number of population-based studies on symptoms attributed to

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