全部 标题 作者
关键词 摘要

OALib Journal期刊
ISSN: 2333-9721
费用:99美元

查看量下载量

相关文章

更多...

Community-Based Research among Marginalized HIV Populations: Issues of Support, Resources, and Empowerment

DOI: 10.1155/2012/601027

Full-Text   Cite this paper   Add to My Lib

Abstract:

A research question was posed to us by a local HIV-resource organization interested in exploring the educational and service needs of those unreached. In order to properly address this inquiry, we developed a community-based participatory research by training peer-led volunteers to facilitate focus-group discussions within Aboriginal and refugees participants following an interview guide. We gathered Aboriginal people and refugees separated into three focus groups each, enrolling a total of 41 self-identified HIV-positive, 38 males. The discussions were tape recorded upon consent and lasted between 59 and 118 minutes. We analyzed the thematic information collected interactively through constant comparison. The qualitative data leading to categories, codes, and themes formed the basis for the spatial representation of a conceptual mapping. Both groups shared similar struggles in living with HIV and in properly accessing local nonmedical HIV resources and discussed their concerns towards the need for empowerment and support to take control of their health. 1. HIV Resource Services and Marginalized Communities The available literature has been quite prolific on issues around the medical side of HIV, particularly the uptake of HIV antiretroviral therapy adherence, cost, availability, and side effects [1–4]. Very few have discussed access and use of nonmedical HIV resources services [5]. Vancouver, Canada, has experienced a decrease in new HIV diagnoses [6], while new HIV cases amongst Aboriginal peoples and other populations continue to rise [7, 8]. New immigrants and refugees from HIV-endemic countries add to this pool when arriving to Canada [9, 10]. The strategic plan of the BC Center for Excellence in HIV/AIDS (BC-CfE) and reports from the BC Center for Disease Control have highlighted that different HIV-marginalized population groups in Vancouver remain at risk for further health struggles and isolation unmitigated by stigma and fear [5, 9]. Our understanding of marginalised communities encompass those who are disadvantaged in terms of the structures and conditions that shape their lives, health outcomes, and social positions in society [11]. In order to utilize the full advantage of HIV/AIDS information including printed media, support groups, and drop-ins, these marginalised groups must be aware of the existence of these resource services. However, there seems to be a gap between the resources that are being offered and those accessing them [2, 12]. Based on the current trend of HIV infection identified in the BCCDC and BC-CfE reports, different HIV

References

[1]  C. O. Cunningham, N. L. Sohler, M. D. Wong et al., “Utilization of health care services in hard-to-reach marginalized HIV-infected individuals,” AIDS Patient Care and STDs, vol. 21, no. 3, pp. 177–186, 2007.
[2]  W. K. Luseno, W. M. Wechsberg, T. L. Kline, and R. M. Ellerson, “Health services utilization among South African women living with HIV and reporting sexual and substance-use risk behaviors,” AIDS Patient Care and STDs, vol. 24, no. 4, pp. 257–264, 2010.
[3]  M. J. Mugavero, J. A. Davila, C. R. Nevin, and T. P. Giordano, “From access to engagement: measuring retention in outpatient HIV clinical care,” AIDS Patient Care and STDs, vol. 24, no. 10, pp. 607–613, 2010.
[4]  E. Wood, T. Kerr, A. Palepu et al., “Slower uptake of HIV antiretroviral therapy among Aboriginal injection drug users,” Journal of Infection, vol. 52, no. 4, pp. 233–236, 2006.
[5]  M. A. Brondani, I. Cho, L. Cho, and R. P. Kerston, “HIV resources and the marginalized HIV community: understanding the needs,” Sexually Transmitted Infections. In press.
[6]  R. S. Remis and W. D. Sutherland, “The epidemiology of HIV and AIDS in Canada: current perspectives and future needs,” Canadian Journal of Public Health, vol. 84, supplement 1, pp. S34–S38, 1993.
[7]  R. S. Hogg, M. T. Schechter, J. S. G. Montaner, I. Goldstone, K. Craib, and M. V. O'Shaughnessy, “Impact of HIV infection and AIDS on death rates in British Columbia and Canada,” Canadian Medical Association Journal, vol. 150, no. 5, pp. 711–717, 1994.
[8]  C. W. McInnes, E. Druyts, S. S. Harvard et al., “HIV/AIDS in Vancouver, British Columbia: a growing epidemic,” Harm Reduction Journal, vol. 6, p. 5, 2009.
[9]  BCCDC Annual Update Report HIV/AIDS, 2008.
[10]  C. L. Miller, P. M. Spittal, J. C. Frankish, K. Li, M. T. Schechter, and E. Wood, “HIV and hepatitis C outbreaks among high-risk youth in Vancouver demands a public health response,” Canadian Journal of Public Health, vol. 96, no. 2, pp. 107–108, 2005.
[11]  A. Salmon, A. J. Browne, and A. Pederson, “‘Now we call it research’: participatory health research involving marginalized women who use drugs,” Nursing Inquiry, vol. 17, no. 4, pp. 336–345, 2010.
[12]  N. Dowshen, H. J. Binns, and R. Garofalo, “Experiences of HIV-related stigma among young men who have sex with men,” AIDS Patient Care and STDs, vol. 23, no. 5, pp. 371–376, 2009.
[13]  J. B. Glasson, E. M. Chang, and J. W. Bidewell, “The value of participatory action research in clinical nursing practice.,” International Journal of Nursing Practice, vol. 14, no. 1, pp. 34–39, 2008.
[14]  H. T. Chen, “Designing and conducting participatory outcome evaluation of community-based organizations' HIV prevention programs,” AIDS Education and Prevention, vol. 14, no. 3, pp. 18–26, 2002.
[15]  N. Kaleeba, S. Kalibala, M. Kaseje et al., “Participatory evaluation of counselling, medical and social services of the AIDS Support Organization (TASO) in Uganda,” AIDS Care, vol. 9, no. 1, pp. 13–26, 1997.
[16]  A. Madison, R. Hung, and E. Jean-Louis, “The Boston Haitian HIV prevention coalition formative evaluation: a participatory approach to community self-assessment,” Ethnicity and Disease, vol. 14, supplement 3, pp. S1–S1, 2004.
[17]  L. Mkandawire-Valhmu and P. E. Stevens, “The critical value of focus group discussions in research with women living with HIV in Malawi,” Qualitative Health Research, vol. 20, no. 5, pp. 684–696, 2010.
[18]  I. Petersen, A. Bhagwanjee, A. Bhana, and Z. Mahintsho, “The development and evaluation of a manualised participatory HIV/AIDS risk reduction programme (Sex and Risk) for tertiary level learners: a pilot study,” African Journal of AIDS Research, vol. 3, no. 1, pp. 93–100, 2004.
[19]  S. M. Ahmed, B. Beck, C. A. Maurana, and G. Newton, “Overcoming barriers to effective community-based participatory research in US medical schools,” Education for Health, vol. 17, no. 2, pp. 141–151, 2004.
[20]  S. D. Rhodes, R. M. Malow, and C. Jolly, “Community-based participatory research: a new and not-so-new approach to HIV/AIDS prevention, care, and treatment,” AIDS Education and Prevention, vol. 22, no. 3, pp. 173–183, 2010.
[21]  M. Minkler and n. Wallerstein, Community-Based Participatory Research: From Process to Outcomes, Jossey-Bass, San Francisco, Calif, USA, 2008.
[22]  C. M. Roy and R. Cain, “The involvement of people living with HIV/AIDS in community-based organizations: contributions and constraints,” AIDS Care, vol. 13, no. 4, pp. 421–432, 2001.
[23]  R. Travers, M. G. Wilson, S. Flicker et al., “The greater involvement of people living with AIDS principle: theory versus practice in Ontario's HIV/AIDS community-based research sector,” AIDS Care, vol. 20, no. 6, pp. 615–624, 2008.
[24]  M. Casey and R. Kreuger, Focus Groups: A Practical Guide for Applied Research, Sage, Thousand Oaks, Calif, USA, 2000.
[25]  H. Finch and J. Lewis, “Focus group,” in Qualitative Research Practice: A Guide for Social Science Students and Researchers, Sage, Thousand Oaks, Calif, USA, 2003.
[26]  R. Kreuger, Focus Groups: A Practical Guide for Applied Research, Sage, Thousand Oaks, Calif, USA, 1994.
[27]  J. B. Brown, I. Dickie, L. Brown, and J. Biehn, “Long-term attendance at a family practice teaching unit: qualitative study of patients' views,” Canadian Family Physician, vol. 43, pp. 901–906, 1997.
[28]  B. Calder, “Focus groups and the nature of qualitative marketing research,” Journal of Marketing research, vol. 14, no. 3, pp. 353–364, 1977.
[29]  M. Patton, Qualitative Research and Evaluation Methods, Sage Publications, Thousand Oaks, Calif, USA, 2001.
[30]  L. Berney, M. Kelly, L. Doyal, G. Feder, C. Griffiths, and I. R. Jones, “Ethical principles and the rationing of health care: a qualitative study in general practice,” British Journal of General Practice, vol. 55, no. 517, pp. 620–625, 2005.
[31]  P. Hague, Market Research, Kogan Page Ltd., London, UK, 2002.
[32]  J. Creswell, Qualitative Inquire and Research Design: Choosing Among Five Traditions, Sage, Thousand Oaks, Calif, USA, 1998.
[33]  D. Stewart, P. Shamdasani, and D. Rook, Focus Groups: Theory and Practice, Sage, Thousand Oaks, Calif, USA, 2nd edition, 2007.
[34]  S. Wayal, F. Cowan, P. Warner, A. Copas, D. Mabey, and M. Shahmanesh, “Contraceptive practices, sexual and reproductive health needs of HIV-positive and negative female sex workers in Goa, India,” Sexually Transmitted Infections, vol. 87, no. 1, pp. 58–64, 2011.
[35]  F. Thomas, P. Aggleton, and J. Anderson, “If I cannot access services, then there is no reason for me to test: the impacts of health service charges on HIV testing and treatment amongst migrants in England,” AIDS Care, vol. 22, no. 4, pp. 526–531, 2010.
[36]  F. Molitor, J. Waltermeyer, M. Mendoza et al., “Locating and linking to medical care HIV-positive persons without a history of care: findings from the California Bridge Project,” AIDS Care, vol. 18, no. 5, pp. 456–459, 2006.
[37]  M. A. Brondani, M. I. MacEntee, R. S. Bryant, and B. O'Neill, “Using written vignettes in focus groups among older adults to discuss oral health as a sensitive topic,” Qualitative Health Research, vol. 18, no. 8, pp. 1145–1153, 2008.
[38]  M. Carey, “Comments: concerns in the analysis of focus group data,” Qualitative Health Research, vol. 5, no. 4, pp. 487–495, 1995.
[39]  NIB, “Indian control of education,” Policy Paper Presented to the Minister of Indian Affairs and Northern Development, National Indian Brotherhood, Ottawa, Canada, 1972.
[40]  M. Jimenez, Coming to Canada With Dreams and HIV, The Globe and Mail, Ontario, Canada, 2004.
[41]  M. G. Shedlin and L. Shulman, “Qualitative needs assessment of HIV services among Dominican, Mexicon and Central American immigrant populations living in the New York City area,” AIDS Care, vol. 16, no. 4, pp. 434–445, 2004.
[42]  L. Gilbert and L. Walker, “'My biggest fear was that people would reject me once they knew my status...': stigma as experienced by patients in an HIV/AIDS clinic in Johannesburg, South Africa,” Health and Social Care in the Community, vol. 18, no. 2, pp. 139–146, 2010.
[43]  G. Matthews, I. J. Deary, and M. C. Whiteman, Personality Traits, Cambridge University Press, Cambridge, UK, 2003.
[44]  J.-P. Restoule, Seeing Ourselves. John Macionis and Nijole v. Benokraitis and Bruce Ravelli, Pearson/Prentice Hall, Toronto, Canada, 2002.
[45]  W. S. Armstrong and C. del Rio, “HIV-associated resources on the internet,” Topics in HIV Medicine, vol. 17, no. 5, pp. 151–162, 2009.
[46]  W. H. Curioso and A. E. Kurth, “Access, use and perceptions regarding Internet, cell phones and PDAs as a means for health promotion for people living with HIV in Peru,” BMC Medical Informatics and Decision Making, vol. 7, p. 24, 2007.
[47]  K. J. Horvath, E. M. Harwood, C. Courtenay-Quirk et al., “Online resources for persons recently diagnosed with HIV/AIDS: an analysis of HIV-related webpages,” Journal of Health Communication, vol. 15, no. 5, pp. 516–531, 2010.
[48]  C. O. Cunningham, X. Li, K. Ramsey, and N. L. Sohler, “A comparison of HIV health services utilization measures in a marginalized population: self-report versus medical records,” Medical Care, vol. 45, no. 3, pp. 264–268, 2007.
[49]  P. M. Reeves, S. B. Merriam, and B. C. Courtenay, “Adaptation to HIV infection: the development of coping strategies over time,” Qualitative Health Research, vol. 9, no. 3, pp. 344–361, 1999.
[50]  C. M. Aldwin, K. J. Sutton, and M. Lachman, “The development of coping resources in adulthood,” Journal of Personality, vol. 64, no. 4, pp. 837–871, 1996.
[51]  S. Kwan, S. Williams, and M. Duggal, “An assessment of the appropriateness of dental health education materials for ethnic minorities,” International Dental Journal, vol. 46, pp. 277–285, 1996.
[52]  B. Resnick, “Health promotion practices of the older adult,” Public Health Nursing, vol. 17, no. 3, pp. 160–168, 2000.
[53]  L. Nichols, P. B. Tchounwou, L. Mena, and D. Sarpong, “The effects of environmental factors on persons living with HIV/AIDS,” International Journal of Environmental Research and Public Health, vol. 6, no. 7, pp. 2041–2054, 2009.
[54]  S. Cobb, “Social support as a moderator of life stress,” Psychosomatic Medicine, vol. 38, no. 5, pp. 300–314, 1976.
[55]  K. Siegel and E. W. Schrimshaw, “The perceived benefits of religious and spiritual coping among older adults living with HIV/AIDS,” Journal for the Scientific Study of Religion-, vol. 41, no. 1, pp. 1–102, 2002.
[56]  I. Kudel, S. Cotton, M. Szaflarski, W. C. Holmes, and J. Tsevat, “Spirituality and religiosity in patients with HIV: a test and expansion of a model,” Annals of Behavioral Medicine, vol. 41, no. 1, pp. 92–103, 2011.
[57]  M. D. Granger and G. N. Price, “Does religion constrain the risky sex behaviour associated with HIV/AIDS?” Applied Economics, vol. 41, no. 6, pp. 791–802, 2009.
[58]  J. Garcia and R. G. Parker, “Resource mobilization for health advocacy: Afro-Brazilian religious organizations and HIV prevention and control,” Social Science and Medicine, vol. 72, no. 12, pp. 1930–1938, 2011.
[59]  L. F. Berkman, “Social support, social networks, social cohesion and health,” Social Work in Health Care, vol. 31, no. 2, pp. 3–14, 2000.
[60]  W. Sorensen, L. Lopez, and P. Anderson, “Latino AIDS immigrants in the Western Gulf states: a different population and the need for innovative prevention strategies,” Journal of Health and Social Policy, vol. 13, no. 1, pp. 1–19, 2001.
[61]  A. Knowlton, W. Hua, and C. Latkin, “Social support among HIV positive injection drug users: implications to integrated intervention for HIV positives,” AIDS and Behavior, vol. 8, no. 4, pp. 357–363, 2004.
[62]  I. Kawachi and L. Berkman, Social Cohesion, Social Capital and Health, Social Epidemiology, Oxford University press Inc, New York, NY, USA, 2000.
[63]  J. B. Bradford, “The promise of outreach for engaging and retaining out-of-care persons in HIV medical care,” AIDS Patient Care and STDs, vol. 21, supplement 1, pp. S-85–S-91, 2007.
[64]  E. Mykhalovskiy, S. Patten, C. Sanders, M. Bailey, and D. Taylor, “Beyond buzzwords: toward a community-based model of the integration of HIV treatment and prevention,” AIDS Care, vol. 21, no. 1, pp. 25–30, 2009.
[65]  D. Culhane, “Narratives of hope and despair in Downtown Eastside Vancouver,” in Healing traditions: The Mental Health of Aboriginal Peoples in Canada Vancouver, University of British Columbia Press, Vancouver, Canada, 2009.
[66]  C. E. Newman, M. Bonar, H. S. Greville, S. C. Thompson, D. Bessarab, and S. C. Kippax, “Barriers and incentives to HIV treatment uptake among Aboriginal people in Western Australia,” AIDS, vol. 21, supplement 1, pp. S13–S17, 2007.

Full-Text

comments powered by Disqus

Contact Us

service@oalib.com

QQ:3279437679

WhatsApp +8615387084133