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- 2019
Development of a pilot rare disease registry: a focus group study of initial steps towards the establishment of a rare disease ecosystem in SloveniaDOI: 10.1186/s13023-019-1146-x Keywords: Rare diseases, Pilot rare disease registry, National rare disease registry, Rare disease ecosystem, Case study, Focus group, Slovenia Abstract: Priority areas and critical factors in the RD field highlighted by the expert
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