Home Caregivers Training Program for Amyotrophic Lateral Sclerosis: Insights From a Pilot Project

Amyotrophic lateral sclerosis (ALS) has an uncertain progression timeframe that leading to total dependence of a caregiver. A training program (TP) about home health care for ALS patient caregivers can help to address the burden of care. The feasibility outcome was caregiver’s participation, and the primary outcome was level of learning. We used theoretical and hands-on approaches to training basic skills during 5 days. All participants undertaken to a written exam at the end of TP, and we assessed the methodology used through satisfaction questionnaires. We achieved a good adherence (77 participants) and a successful completion participation (70% approval). Initiatives that meet the needs of caregivers and help the ALS patients to maintain emotional and social link to their community should be part of the disease clinical management