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- 2018
Assessing the prevalence of juvenile systemic sclerosis in childhood using administrative claims data from the United StatesKeywords: Prevalence,juvenile systemic sclerosis Abstract: Juvenile systemic sclerosis is a very rare orphan disease. To date, only one publication has estimated the prevalence of juvenile systemic sclerosis using a survey of specialized physicians. We conducted a study of administrative claims data in the United States using the International Classification of Diseases, Ninth Revision diagnosis codes and found a prevalence of approximately 3 per 1,000,000 children. This estimate will inform the planning of prospective studies
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