Assessment of Satisfaction with Life among Elderly Patients Receiving HIV Care and Treatment in Mulago HIV Clinic: A Chronic Illness Quality of Life Model
Objective: This study aimed at assessing satisfaction with life among elderly HIV patients attending Mulago HIV Clinic. Methodology: A cross-sectional study design carried out among elderly people (>50 years old) attending Mulago HIV clinic, as stated by the WHO standard age cut-off of >50 years. A random selection of 353 elderly HIV patients was made. The study collected quantitative data to assess patient satisfaction with life, Illness related to discrimination, Barriers to healthcare and social services, and Physical wellbeing, social support and coping using quantitative data collection techniques. Interview discussions were harnessed to obtain patients’ opinions and perceptions and then results grouped into themes. EPIDATA and STATA 14.2 statistical softwares were used for statistical analysis. Results: The study showed that only variables that were significantly associated at multivariate level are, disagreeing that other patients are seen before you when you are first to arrive, which had an odds ratio of 2.87, disagreeing that your employer can never promote you which had an odds ratio of 6.87 compared to agreeing, not being sure whether friend or family member cannot share room/utensil/clothes with you reduced the odds of being satisfied by 95% when compared to agreeing and disagreeing that friend or family member blames you for not getting better with an odds ratio of 5.65 compared to agreeing. Conclusion: This study unearthed existing gaps in levels of satisfaction. These shortfalls in the service delivery can be addressed according to the following recommendations below: Create a quick way for elderly patients to see a clinician and give them priority, provide more work-related support awareness programs; Put more efforts towards counselling care takers or family members who help them to adhere or socialize with them.
References
[1]
Centers for Disease Control and Prevention (2014) HIV Surveillance Report. Vol. 26.
[2]
Schoenfelder, T., Klewer, J. and Kugler, J. (2011) Determinants of Patient Satisfaction: A Study among 39 Hospitals in an In-Patient Setting in Germany. International Journal for Quality in Health Care, 23, 503-509. https://doi.org/10.1093/intqhc/mzr038
[3]
Jenkinson, C., Coulter, A., Bruster, S., Richards, N. and Chandola, T. (2002) Patients’ Experiences and Satisfaction with Health Care: Results of a Questionnaire Study of Specific Aspects of Care. Quality & Safety in Health Care, 11, 335-339. https://doi.org/10.1136/qhc.11.4.335
[4]
Yellen, E., Davis, G. and Ricard, R. (2002) The Measuring of Patient Satisfaction. Journal of Nursing Care Quality, 16, 23-29. https://doi.org/10.1097/00001786-200207000-00005
[5]
Myburgh, N.G., Solanki, G.C., Smith, M.J. and Lalloo, R. (2005) Patient Satisfaction with Health Care Providers in South Africa: The Influences of Race and Socioeconomic Status. International Journal for Quality in Health Care, 17, 473-477. https://doi.org/10.1093/intqhc/mzi062
[6]
Kagashe, G.A. and Rwebangila, F. (2011) Patient Satisfaction with Health Care Services Provided at HIV Clinics at Amana and Muhimbili Hospitals in Dar es Salaam. African Health Sciences, 11, S60-S66. https://doi.org/10.4314/ahs.v11i3.70072
[7]
Crane, H.M., Lober, W., Webster, E., Harrington, R.D., Crane, P.K., Davis, T.E. and Kitahata, M.M. (2007) Routine Collection of Patient-Reported Outcomes in an HIV Clinic Setting: The First 100 Patients. Current HIV Research, 5, 109-118. https://doi.org/10.2174/157016207779316369
[8]
UNAIDS (2014) Joint United Nations Programme on HIV/AIDS, 2014. The Gap Report. Geneva.
[9]
Muhondwa, E.P., Leshabari, M.T., Mwangu, M., Mbembati, N. and Ezekiel, M.J. (2008) Patient Satisfaction at the Muhimbili National Hospital in Dar es Salaam, Tanzania. East African Journal of Public Health, 5, 67-73. https://doi.org/10.4314/eajph.v5i1.38974
[10]
Bajunirwe, F., Tumwebaze, F., Akakimpa, D., Kityo, C., Mugyenyi, P. and Abongomera, G. (2018) Towards 90-90-90 Target: Factors Influencing Availability, Access, and Utilization of HIV Services—A Qualitative Study in 19 Ugandan Districts. BioMed Research International, 2018, Article ID: 9619684. https://doi.org/10.1155/2018/9619684
[11]
Ministry of Health, Uganda (2019) Uganda Population-Based HIV Impact Assessment (UPHIA) 2016-2017: Final Report. Ministry of Health, Kampala.
[12]
Cahill, S. and Valadéz, R. (2013) Growing Older with HIV/AIDS: New Public Health Challenges. American Journal of Public Health, 103, e7-e15. https://doi.org/10.2105/AJPH.2012.301161
[13]
Youssef, E., Wright, J., Delpech, V., et al. (2018) Factors Associated with Testing for HIV in People Aged ≥50 Years: A Qualitative Study. BMC Public Health, 18, 1204. https://doi.org/10.1186/s12889-018-6118-x
[14]
World Health Organization (2002) Innovative Care for Chronic Conditions: Building Blocks for Actions: Global Report.
[15]
Epping-Jordan, J.E., Pruitt, S.D., Bengoa, R. and Wagner, E.H. (2004) Improving the Quality of Health Care for Chronic Conditions. Quality & Safety in Health Care, 13, 299-305. https://doi.org/10.1136/qshc.2004.010744
[16]
Nuño, R., Coleman, K., Bengoa, R. and Sauto, R. (2012) Integrated Care for Chronic Conditions: The Contribution of the ICCC Framework. Health Policy, 105, 55-64. https://doi.org/10.1016/j.healthpol.2011.10.006
[17]
Narayan, C.S., Sharmistha, B. and Abdur, R.M. (2016) A Cross-Sectional Study on Patient Satisfaction in an Urban Health Care Centre of Siliguri Municipal Corporation, Darjeeling, West Bengal. Medical Journal of Dr. D.Y. Patil University, 9, 325-330. https://doi.org/10.4103/0975-2870.182502
[18]
Martin, L.R., Williams, S.L., Haskard, K.B. and Dimatteo, M.R. (2005) The Challenge of Patient Adherence. Therapeutics and Clinical Risk Management, 1, 189-199.
[19]
Patton, M.Q. (1990) Qualitative Evaluation and Research Methods. 2nd Edition, Sage Publications, Inc., London.
[20]
Slovin, E. (1960) Slovin’s Formula for Sampling Technique. https://prudencexd.weebly.com
[21]
Pavot, W. and Diener, E. (2008) The Satisfaction with Life Scale and the Emerging Construct of Life Satisfaction. The Journal of Positive Psychology, 3, 137-152. https://doi.org/10.1080/17439760701756946
[22]
Diener, E., Emmons, R.A., Larsen, R.J. and Griffin, S. (1985) The Satisfaction with Life Scale. Journal of Personality Assessment, 49, 71-75. https://doi.org/10.1207/s15327752jpa4901_13
[23]
Angell, M. (1997) The Ethics of Clinical Research in the Third World. The New England Journal of Medicine, 337, 847-849. https://doi.org/10.1056/NEJM199709183371209
[24]
Lekalakala-Mokegele, E. (2016) Exploring Gender Perceptions of Risk of HIV Infection and Related Behavior among Elderly Men and Women of Ga-Rankuwa, Gauteng Province, South Africa. SAHARA J: Journal of Social Aspects of HIV/AIDS Research Alliance, 13, 88-95. https://doi.org/10.1080/17290376.2016.1218790
[25]
Khamis, K. and Njau, B. (2014) Patients’ Level of Satisfaction on Quality of Health Care at Mwananyamala Hospital in Dar es Salaam, Tanzania. BMC Health Services Research, 14, 400. https://doi.org/10.1186/1472-6963-14-400
[26]
Shisana, O., Rehle, T., Simbayi, L.C. and Parker, W. (2005) South African National HIV Prevalence, HIV Incidence, Behavior and Communication Survey. Human Sciences Research Council, Cape Town.
[27]
Shisana, O. and Simbayi, L.C. (2007) South African National HIV Prevalence, HIV Incidence, Behavior and Communication Survey. Technical Report, Human Sciences Research Council, Cape Town.
[28]
Ochako, R., Ulwodi, D., Njagi, P., et al. (2011) Trends and Determinants of Comprehensive HIV and AIDS Knowledge among Urban Young Women in Kenya. AIDS Research and Therapy, 8, 11. https://doi.org/10.1186/1472-6963-14-400
[29]
Wright, K., Naar-King, S., Lam, P., Templin, T. and Frey, M. (2007) Stigma Scale Revised: Reliability and Validity of a Brief Measure of Stigma for HIV+ Youth. Journal of Adolescent Health, 40, 96-98. https://doi.org/10.1016/j.jadohealth.2006.08.001
[30]
Lekalakala-Mokegele, E. (2011) A Literature Review of the Impact of HIV and AIDS on the Role of the Elderly in the Sub-Saharan African Community. Health SA Gesondheid, 16, 564-570. https://doi.org/10.4102/hsag.v16i1.564
[31]
Diener, E. and Chan, M.Y. (2011) Happy People Live Longer: Subjective Wellbeing Contributes to Health and Longevity. Applied Psychology: Health and Well-Being, 3, 1-43. https://doi.org/10.1111/j.1758-0854.2010.01045.x
[32]
Syed, S.T., Gerber, B.S. and Sharp, L.K. (2013) Traveling towards Disease: Transportation Barriers to Health Care Access. Journal of Community Health, 38, 976-993. https://doi.org/10.1007/s10900-013-9681-1
[33]
Marbouh, D., Khaleel, I., Al Shanqiti, K., Al Tamimi, M., Simsekler, M., Ellahham, S., Alibazoglu, D. and Alibazoglu, H. (2020) Evaluating the Impact of Patient No-Shows on Service Quality. Risk management and Healthcare Policy, 13, 509-517. https://doi.org/10.2147/RMHP.S232114
[34]
Alpaslan, A. and Mabutho, S.L. (2005) Caring for AIDS Orphans: The Experiences of Elderly Grandmother Caregivers and AIDS Orphans. Social Work, 41, 276-295.
[35]
Kemperman, A., van den Berg, P., Weijs-Perrée, M. and Uijtdewillegen, K. (2019) Loneliness of Older Adults: Social Network and the Living Environment. International Journal of Environmental Research and Public Health, 16, 406. https://doi.org/10.3390/ijerph16030406
[36]
Ramocha, L.M., Louw, Q.A. and Tshabalala, M.D. (2017) Quality of Life and Physical Activity among Older Adults Living in Institutions Compared to the Community. The South African Journal of Physiotherapy, 73, 342. https://doi.org/10.4102/sajp.v73i1.342
[37]
Park, J., Roh, S. and Yeo, Y. (2011) Religiosity, Social Support, and Life Satisfaction among Elderly Korean Immigrants. The Gerontologist, 52, 641-649. https://doi.org/10.1093/geront/gnr103
[38]
Adewuya, A.O., Afolabi, M.O., Ola, B.A., Ogundele, O.A., Ajibare, A.O. and Oladipo, B.F. (2007) Psychiatric Disorders among the HIV-Positive Population in Nigeria: A Control Study. Journal of Psychosomatic Research, 63, 203-206. https://doi.org/10.1016/j.jpsychores.2007.03.006
[39]
Hough, E.S., Magnan, M.A., Templin, T. and Gadelrab, H.F. (2005) Social Network Structure and Social Support in HIV-Positive Inner-City Mothers. Journal of the Association of Nurses in AIDS Care, 16, 14-24. https://doi.org/10.1016/j.jana.2005.05.002
[40]
Charkhian, A., Fekrazad, H., Sajadi, H., Rahgozar, M., Haji Abdolbaghi, M. and Maddahi, S. (2014) Relationship between Health-Related Quality of Life and Social Support in HIV-Infected People in Tehran, Iran. Iranian Journal of Public Health, 43, 100-106.
[41]
Ewa, G. and Marcin, R. (2019) Trajectories of Health-Related Quality of Life and Perceived Social Support among People Living with HIV Undergoing Antiretroviral Treatment: Does Gender Matter? Frontiers in Psychology, 10, 1664. https://www.frontiersin.org/article/10.3389/fpsyg.2019.01664 https://doi.org/10.3389/fpsyg.2019.01664
[42]
Huang, Y., Luo, D., Chen, X., Zhang, D., Huang, Z. and Xiao, S. (2019) Role of Psychosocial Status in Predicting Health-Related Quality of Life at 1-Year Follow-Up among Newly Diagnosed People Living with HIV. PLoS ONE, 14, e0224322. https://doi.org/10.1371/journal.pone.0224322
[43]
Garrido-Hernansaiz, H., Heylen, E., Bharat, S., et al. (2016) Stigmas, Symptom Severity and Perceived Social Support Predict Quality of Life for PLHIV in Urban Indian Context. Health and Quality of Life Outcomes, 14, 152. https://doi.org/10.1186/s12955-016-0556-x
[44]
Sikkema, K.J., Dennis, A.C., Watt, M.H., Choi, K.W., Yemeke, T.T. and Joska, J.A. (2015) Improving Mental Health among People Living with HIV: A Review of Intervention Trials in Low- and Middle-Income Countries. Global Mental Health (Cambridge, England), 2, e19. https://doi.org/10.1017/gmh.2015.17