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Exploring the Lives of Mothers Raising Children with Autism Spectrum Disorder in Japan

DOI: 10.4236/ojn.2023.132010, PP. 167-180

Keywords: Autism Spectrum Disorder, Mothers, Raising Children

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Abstract:

Background: Examining the lives that mothers experience and build will allow us to deepen our understanding of children with ASD and their mothers and facilitate developing support methods. The study aimed to examine the lives of mothers raising children with autism spectrum disorder (ASD) and investigate their sources of support. Method: We conducted a qualitative inductive study using semi-structured interviews to identify characteristics of the lives that mothers have created. Results: Semi-structured interviews were conducted with 11 mothers having children with ASD. The analysis comprised three stages of coding and yielded eight categories. The lives of these mothers contained three themes: preoccupation with parenting children with ASD and their siblings; evolving mother; and using social resources. Mothers engaged in “assessing the characteristics, growth, and changes in the child with ASD”, had a “preoccupation with parenting children with ASD”, and were “thinking about the future of the child with ASD”, and “having goals and plans for parenting” while having “consideration toward the child’s siblings”. During this process, mothers experienced “changes in perspective or approach” and created lifestyles while “receiving help from people around them” and engaged in the “use of social resources”. Conclusions: To avoid becoming preoccupied with parenting and being burdened by their lifestyle, mothers require social support to monitor their perceptions. Furthermore, the utilization of social resources requires the supporting individuals to understand the characteristics of children with ASD, provide appropriate information, and assist in decision-making.

References

[1]  APA (2013) Diagnostic and Statistical Manual of Mental Disorders. 5th Edition (DSM-5), American Psychiatric Association, Washington DC.
[2]  Denda, K. (2017) [Understanding Individualities in Autism Spectrum Disorder]. Japanese Journal of Psychosomatic Medicine, 57, 19-26.
[3]  Maenner, M., Shaw, K.A., Bakian, A.V., Bilder, D.A., Durkin, M.S., Esler, A., Furnier, S.M., Hallas, L., Hall-Lande, J., Hudson, A., Hughes, M.M., Patrick, M., Pierce, K., Poynter, J.N., Salinas, A., Shenouda, J., Vehorn, A., Warren, Z. and Cogswell, M.E. (2021) Prevalence and Characteristics of Autism Spectrum Disorder among Children Aged 8 Years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2018. Morbidity and Mortality Weekly Report, 70, 1-16. https://doi.org/10.15585/mmwr.ss7011a1
[4]  Höfer, J., Hoffmann, F., Kamp-Becker, I., Poustka, L., Roessner, V., Stroth, S., Wolff, N. and Bachmann, C.J. (2019) Pathways to a Diagnosis of Autism Spectrum Disorder in Germany: A Survey of Parents. Child and Adolescent Psychiatry and Mental Health, 13, Article No. 16. https://doi.org/10.1186/s13034-019-0276-1
[5]  Tekinarslan, I.C. (2018) Autism Spectrum Disorder: Experiences of Mothers before and after Their Children’s Diagnosis and Implications for Early Special Education Services. Journal of Education and Training Studies, 6, 68-81.
https://doi.org/10.11114/jets.v6i12.3692
[6]  Kurasawa, S., Tateyama, K., Iwanaga, R., Ohtoshi, T., Nakatani, K. and Yokoi, K. (2018) The Age at Diagnosis of Autism Spectrum Disorder In Children in Japan. International Journal of Pediatrics, 2018, Article ID: 5374725.
https://doi.org/10.1155/2018/5374725
[7]  Asai, K., Yamashita, Y. and Kase, Y. (2022) A Literature Study on the Difficulties and Problem-Solving Behaviors of Mothers of Children with Autism Spectrum Disorders—Focusing on Psychological Support. The Bulletin of Meiji University of Integrative Medicine, 23-24, 13-23.
[8]  Nishimura, C. and Takano, K. (2020) [Processes Experienced by Mothers of Young Children with Autism Spectrum Disorders When Dealing with Difficulties]. Bulletin of the Educational Research Society of Soka University, 72, 163-177.
https://doi.org/10.1016/j.rasd.2020.101518
[9]  Alon, R. (2019) Social Support and Post-Crisis Growth among Mothers of Children with Autism Spectrum Disorder and Mothers of Children with Down Syndrome. Research in Developmental Disabilities, 90, 22-30.
https://doi.org/10.1016/j.ridd.2019.04.010
[10]  Bonis, S. (2016) Stress and Parents of Children with Autism: A Review of Literature. Issues in Mental Health Nursing, 37, 153-163.
https://doi.org/10.3109/01612840.2015.1116030
[11]  Craig, F., Operto, F.F., Giacomo, D.A., Margari, L., Frolli, A., Conson, M., Lvagnes, S., Monaco, M. and Margari, F. (2016) Parenting Stress among Parents of Children with Neurodevelopmental Disorders. Psychiatry Research, 242, 121-129.
https://doi.org/10.1016/j.psychres.2016.05.016
[12]  Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G. and Munson, J. (2013) Parenting-Related Stress and Psychological Distress in Mothers of Toddlers with Autism Spectrum Disorders. Brain and Development, 35, 133-138.
https://doi.org/10.1016/j.braindev.2012.10.004
[13]  Reed, P., Picton, L., Grainger, N. and Osborne, L.A. (2016) Impact of Diagnostic Practices on the Self-Reported Health of Mothers of Recently Diagnosed Children with ASD. International Journal of Environmental Research and Public Health, 13, Article 888. https://doi.org/10.3390/ijerph13090888
[14]  Eow, S.Y., Gan, W.Y., Lim, P.Y., Awang, H. and Mohd, S.Z. (2022) Parental Feeding Practices and Child-Related Factors Are Associated with Overweight and Obesity in Children and Adolescents with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 52, 3655-3667.
https://doi.org/10.1007/s10803-021-05247-7
[15]  Levin, A. and Scher, A. (2016) Sleep Problems in Young Children with Autism Spectrum Disorders: A Study of Parenting Stress, Mothers’ Sleep-Related Cognitions, and Bedtime Behaviors. CNS Neuroscience & Therapeutics, 22, 921-927.
https://doi.org/10.1111/cns.12651
[16]  Martin, C.A., Sciberras, E., Papadopoulos, N., Engel, L., Hiscock, H., Williams, K., Howlin, P., McGillivray, J. and Rinehart, N.J. (2021) Associations between Child Sleep Problem Severity and Maternal Well-Being in Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 51, 2500-2510.
https://doi.org/10.1007/s10803-020-04726-7
[17]  Ito, Y. and Kobayashi, K. (2018) [Child-Rearing Experiences of Mothers of Children with Identified Traits of Developmental Disorders—From Identification to Receiving Continuous Specialized Support]. Journal of Japan Academy of Community Health Nursing, 21, 22-30.
[18]  Watanabe, M. (2016) [Structure of Emotional Conflict in the Subjective Experience for Mothers of Autistic Children Regarding Their Children’s Schooling]. Japanese Journal of Social Welfare, 57, 57-67.
[19]  Iwashita, Y. and Kikuchi, T. (2010) [Informing Self and Classmates about Developmental Disabilities]. Memoirs of the Faculty of Education, Kumamoto University. The Humanities, 59, 69-76.
[20]  Kawakami, A. (2014) [Life Process Developed by Siblings of Individuals with Autistic Spectrum Disorders]. Journal of Japan Academy of Nursing Science, 34, 301-310.
https://doi.org/10.5630/jans.34.301
[21]  Yamamoto, M., Kadoma, A. and Kato, M. (2010) [Experiential Process of Mothers Who Raise Children with Pervasive Developmental Disorders Including Autism]. Journal of Japan Society of Nursing Research, 33, 21-30.
[22]  Mochizuki, T. and Kimura, H. (1980) [Crisis of Modern Families]. Yuuhikaku, Tokyo,12-13.
[23]  Gregg, M., Asahara, K. and Yokoyama, Y., Eds. (2007) Introductory Guide to Qualitative Research in Nursing. Ishiyaku Publishers, Inc., Tokyo, 62.
[24]  Futagi, Y. and Yamamoto, Y. (2002) [Disclosure of a Diagnosis of Childhood Autism and Parents’ Acceptance of the Disability]. Brain and Development, 34, 336-342.
[25]  Matsuoka, S., Tamaki, A., Hatsuda, M. and Nishiike, E. (2013) [Difficulties Experienced by Mothers of Children with Pervasive Developmental Disorders and Their Psychological Support]. Journal of Japan Academy of Nursing Science, 33, 12-20. https://doi.org/10.5630/jans.33.2_12
[26]  Itai, S. (1991) [Psychological Distance between Mother and Child]. The Journal of the Kurume Medical Association, 54, 572-589.
[27]  Nagata, M. and Sano, S. (2013) [Depression and Parenting Stress in Mothers of Children Suspected ASD]. Psychiatria et Neurologica Paediatrica Japonica, 53, 203-209.
[28]  Ichikawa, S., Ed. (1996) [Metacognition and Attention in Thinking]. In: Thinking, Cognitive Psychology 4, University of Tokyo Press, Tokyo, 157-180.
[29]  Metcalfe, J. (1994) A Computational Modeling Approach to Novelty Monitoring, Metacognition, and Frontal Lobe Dysfunction. In: Metcalfe, J. and Shimamura, A.P., Eds., Metacognition: Knowing about Knowing, The MIT Press, Cambridge, MA, 137-156. https://doi.org/10.7551/mitpress/4561.003.0009

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