全部 标题 作者
关键词 摘要

OALib Journal期刊
ISSN: 2333-9721
费用:99美元

查看量下载量

相关文章

更多...

Literature Review on Support for Children and Families Experiencing Parental Bereavement

DOI: 10.4236/ojn.2024.144010, PP. 139-163

Keywords: Terminal Care, Family Support, Child, Parental Death, Palliative Care

Full-Text   Cite this paper   Add to My Lib

Abstract:

Purpose: This study aimed to understand the actual nursing support in a wide perspective by reviewing overseas literature on support for children who have experienced parental bereavement and their families. The goal was to identify future challenges in nursing support in clinical practice in Japan. Method: Literature searchable as of May 2023 was retrieved using PubMed, resulting in 11 relevant articles. Result: The results revealed the following: 1) For support provided to children, 13 codes were condensed into 5 subcategories and 4 categories. 2) For support provided to families, 36 codes were condensed into 11 subcategories and 4 categories. Conclusion: Open communication was found to be essential for supporting children and their families who have experienced parental bereavement. Moreover, involvement of multiple professions facilitated the provision of specialized support to address diverse needs of children and families, playing a crucial role in overcoming grief. Additionally, the effectiveness of support systems for bereaved families highlighted the need for nursing professionals in Japan to gain knowledge through learning opportunities and to establish a multi-disciplinary approach to support, thus indicating future challenges in nursing support.

References

[1]  Yokoyama, S. (2015) Actual Situations of Hospice, Palliative Care, and Grief Support in America: Through a Study Tour of Palliative Care in New York. Angel University Bulletin, 15, 55-64. (In Japanese)
[2]  Sandler, I.N., Wolchik, S.A., Ayers, T.S., Tein, J.Y. and Luecken, L. (2013) Family Bereavement Program (FBP) Approach to Promoting Resilience Following the Death of a Parent. Family Science, 4, 87-94.
https://doi.org/10.1080/19424620.2013.821763
[3]  Hope Tree (2023) Programs for Children. (In Japanese)
https://hope-tree.jp/program/
[4]  National Cancer Center (2023) Estimate of the Number of Cancer Patients under 18 Years Old and Their Children: Initial Calculation of National Estimated Values, Such as Annual Incidence and Average Age. (In Japanese)
https://www.ncc.go.jp/jp/information/pr_release/2015/1104/index.html
[5]  Senoo, F., Sanpei, M., Matsuura, S. and Hira, S. (2013) Reality of Care for Children with Parents in the Terminal Stage of Cancer and Related Factors. Shimane University Medical Journal, 36, 39-44. (In Japanese)
[6]  Koyanagi, S. and Muraoka, H. (2008) Narratives of Experiences Overcoming the Death of a Parent during Adolescence: Through Retrospective Interviews. Journal of Toho University Nursing Research Society, 5, 14-24. (In Japanese)
[7]  Kobayashi, M. (2019) When a Parent Has Cancer. What Schools Can Do for Children. 2nd Edition, University of the Sacred Heart, Tokyo.
https://hope-tree.jp/wp-content/uploads/2023/09/gakkou_ni_dekirukoto_20230831.pdf
[8]  Yokoyama, S. (2017) Experiences of Mothers Who Lost Their Spouses to Cancer While Raising Children and Living with Children after Bereavement. Journal of Japan Society of Cancer Nursing, 31, 82-91. (In Japanese)
[9]  Kukitsu, T. (2022) Care for Children with Parents with Cancer: Overview: Support for Children with Parents with Cancer and Grief Care. End-of-Life Care, 6, 28-33. (In Japanese)
[10]  Dröfn, B., Tove, B.G., Tommy, N., Ulrika, K., Gunnar, S. and Carl, J.F. (2019) Losing a Parent to Cancer as a Teenager: Family Cohesion in Childhood, Teenage, and Young Adulthood as Perceived by Bereaved and Non-Bereaved Youths. Psycho-Oncology, 28, 1845-1853.
https://doi.org/10.1002/pon.5163
[11]  Hirooka, K., Chaen, M. and Kagami, T. (2013) Nurses’ Involvement with Children with Terminally Ill Parents. Palliative Care Research, 8, 312-318. (In Japanese)
https://doi.org/10.2512/jspm.8.312
[12]  Megan, W., Anette, A., Ulrika, K. and Josefin, S. (2019) Communication in Families with Minor Children Following the Loss of a Parent to Cancer. European Journal of Oncology Nursing, 39, 41-46.
https://doi.org/10.1016/j.ejon.2019.01.005
[13]  Zaider, T. and Kissane, D. (2009) The Assessment and Management of Family Distress during Palliative Care. Supportive and Palliative Care, 3, 67-71.
https://doi.org/10.1097/SPC.0b013e328325a5ab
[14]  Hirooka, K., Oosako, M., Shimoaraiso, Y., Hagiwara, K., Hamasato, K., Yamanouchi, H., Dozono, F., Yoshimi, T. and Dozono, H. (2008) Care for Children Who Lose a Parent to Cancer: Reflections on the Involvement in Communicating the Death of a Parent. Palliative Care, 18, 255-259.
[15]  Kojima, H. (2004) Grief and Social Support after Bereavement of a Parent in Childhood. Clinical Life and Death Studies, 9, 17-24. (In Japanese)
[16]  Sakaguchi, Y. (2016) Implementation Status and Future Challenges of Bereaved Family Care Services in Hospice and Palliative Care Wards in Japan: Comparison of Surveys in 2002 and 2012. Palliative Care Research, 11, 137-145. (In Japanese)
https://doi.org/10.2512/jspm.11.137
[17]  Zaider, T.I., Salley, C.G., Terry, R. and Davidovits, M. (2015) Parenting Challenges in the Setting of Terminal Illness: A Family-Focused Perspective. Current Opinion in Supportive and Palliative Care, 9, 52-57.
https://doi.org/10.1097/SPC.0000000000000114
[18]  Angelhoff, C., Sveen, J., Alvariza, A., Weber-Falk, M. and Kreicbergs, U. (2021) Communication, Self-Esteem and Prolonged Grief in Parent-Adolescent Dyads, 1-4 Years Following the Death of a Parent to Cancer. European Journal of Oncology Nursing, 50, Article 101883.
https://doi.org/10.1016/j.ejon.2020.101883
[19]  Semple, C.J., McCaughan, E., Smith, R. and Hanna, J.R. (2022) Parent’s with Incurable Cancer: ‘Nuts and Bolts’ of How Professionals Can Support Parents to Communicate with Their Dependent Children. Patient Education and Counseling, 105, 775-780.
https://doi.org/10.1016/j.pec.2021.06.032
[20]  Hara, Y., Tada, K., Enomoto, K., Mori, S., Hara, K. and Fukumoto, S. (2021) Breast Cancer in the Child-Rearing Generation: How to Communicate Parental Cancer and Death to Children. Itabashi Medical Association Journal, 24, 103-105. (In Japanese)
[21]  Kobayashi, M. (2013) Support for Cancer Patients and Children: Support for Informing Children that Their Parents Have Cancer. Journal of Cancer Nursing, 18, 57-61. (In Japanese)
[22]  Fearnley, R. (2012) Supporting Children When a Parent Has a Life-Threatening Illness: The Role of the Community Practitioner. Community Practitioner, 85, 22-25.
[23]  Cockle-Hearne, J., Reed, E., Todd, J. and Ream, E. (2022) The Dying Parent and Dependent Children: A Nationwide Survey of Hospice and Community Palliative Care Support Services. BMJ Supportive & Palliative Care, 12, e696-e704.
https://doi.org/10.1136/bmjspcare-2019-001947
[24]  Hanna, J.R. and Semple, C.J. (2022) ‘I Didn’t Know What Was in Front of Me’ —Bereaved Parents’ Experience of Adapting to Life When a Co-Parent of Dependent Children Has Died with Cancer. Psycho-Oncology, 31, 1651-1659.
https://doi.org/10.1002/pon.6010
[25]  Saldinger, A., Cain, A. and Porterfield, K. (2003) Managing Traumatic Stress in Children Anticipating Parental Death. Psychiatry, 66, 168-181.
https://doi.org/10.1521/psyc.66.2.168.20613
[26]  Park, E.M., Deal, A.M., Yopp, J.M., Edwards, T.P., Wilson, D.J., Hanson, L.C. and Rosenstein, D.L. (2016) End-of-Life Experiences of Mothers with Advanced Cancer: Perspectives of Widowed Fathers. BMJ Supportive & Palliative Care, 6, 437-444.
https://doi.org/10.1136/bmjspcare-2015-000976
[27]  Park, E.M., Deal, A.M., Yopp, J.M., Edwards, T., Stephenson, E.M., Hailey, C.E., Nakamura, Z.M. and Rosenstein, D.L. (2017) End-of-Life Parental Communication Priorities among Bereaved Fathers Due to Cancer. Patient Education and Counseling, 100, 1019-1023.
https://doi.org/10.1016/j.pec.2016.12.007
[28]  Millar, R., Bell, M. and Casey, L. (2023) The Struggle between Protecting Children from and Preparing Them for the Death of Their Parent: A Qualitative Study. American Journal of Hospice and Palliative Medicine, 40, 539-543.
https://doi.org/10.1177/10499091221111560
[29]  Soutome, Y. and Okamoto, S. (2017) Grief Care Was Effective for Psychosomatic Symptoms in Children Who Lost Their Parents: 5 Cases. Childs Heart and Body, 25, 416-420. (In Japanese)
[30]  Japan Play Therapy Association (2024) About Our Association. (In Japanese)
https://www.ja4pt.org/?page_id=167
[31]  Ishii, C. and Sakon, R. (2009) Integrated Grief Support for Children and Families Who Have Lost Parents: Through Play Therapy and Family Therapy. Clinical Thanatology, 13, 91-97. (In Japanese)
[32]  Semple, C.J., McCaughan, E., Beck, E.R. and Hanna, J.R. (2021) ‘Living in Parallel Worlds’—Bereaved Parents’ Experience of Family Life When a Parent with Dependent Children Is at End of Life from Cancer: A Qualitative Study. Palliative Medicine, 35, 933-942.
https://doi.org/10.1177/02692163211001719

Full-Text

Contact Us

[email protected]

QQ:3279437679

WhatsApp +8615387084133