Background. Cardiovascular disease (CVD) is a major cause of increased morbidity and mortality globally. Clinical practice guidelines recommend that individuals with CVD are routinely instructed to engage in self-care including diet restrictions, medication adherence, and symptom monitoring. Objectives. To describe the nature of nurse-led CVD self-care interventions, identify limitations in current nurse-led CVD self-care interventions, and make recommendations for addressing them in future research. Design. Integrative review of nurse-led CVD self-care intervention studies from PubMed, MEDLINE, ISI Web of Science, and CINAHL. Primary studies ( ) that met the inclusion criteria of nurse-led RCT or quasiexperimental CVD self-care intervention studies (years 2000 to 2012) were retained and appraised. Quality of the review was assured by having at least two reviewers screen and extract all data. Results. A variety of self-care intervention strategies were studied among the male (57%) and Caucasian (67%) dominated samples. Combined interventions were common, and quality of life was the most frequent outcome evaluated. Effectiveness of interventions was inconclusive, and in general results were not sustained over time. Conclusions. Research is needed to develop and test tailored and inclusive CVD self-care interventions. Attention to rigorous study designs and methods including consistent outcomes and measurement is essential. 1. Introduction Cardiovascular disease (CVD) is a major cause of morbidity and mortality worldwide [1]. It is estimated that 1 in 3 American adults have CVD. After age of 40, the lifetime risk of developing CVD is 49% for men and 32% for women [2]. Although advances in medical and surgical management of CVD have substantially reduced cardiac mortality rates in the United States (US), individuals with CVD remain at increased risk for further cardiac events, including unstable angina, myocardial infarction, and heart failure [1]. Cardiovascular disease in the US costs more than $108 billion each year [3], which includes the cost of health care services, medications, and lost productivity. Individuals with CVD are routinely instructed to engage in self-care behaviors as part of daily disease management. Numerous terms are used interchangeably with self-care including self-management, self-regulation, self-monitoring, adherence, and compliance to describe the behaviors or activities in which patients are asked to engage in to promote health and well-being [4]. In the cardiovascular literature, self-care refers to adherence to treatment
References
[1]
A. S. Go, D. Mozaffarian, V. L. Roger, et al., “Heart disease and stroke statistics—2013 update: a report from the American Heart Association,” Circulation, vol. 127, no. 1, pp. e6–e245, 2013.
[2]
D. Lloyd-Jones, R. J. Adams, T. M. Brown, et al., “Heart disease and stroke statistics—2010 update: a report from the American Heart Association,” Circulation, vol. 121, pp. e46–e215, 2010.
[3]
V. L. Roger, A. S. Go, D. M. Lloyd-Jones, et al., “Heart disease and stroke statistics—2012 update,” Circulation, vol. 125, no. 1, pp. e2–e220, 2012.
[4]
A. A. Richard and K. Shea, “Delineation of self-care and associated concepts,” Journal of Nursing Scholarship, vol. 43, no. 3, pp. 255–264, 2011.
[5]
B. Riegel, “The self-care model for chronic stable angina,” in American Heart Association Scientific Sessions, Orlando, Fla, USA, 2009.
[6]
S. D. Fihn, J. M. Gardin, J. Abrams, et al., “ACCF/AHA/ACP/AATS/PCNA/SCAI/STS guideline for the diagnosis and management of patients with stable ischemic heart disease: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines, and the American College of Physicians, American Association for Thoracic Surgery, Preventive Cardiovascular Nurses Association, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons,” Journal of the American College of Cardiology, vol. 60, no. 24, pp. e44–e164, 2012.
[7]
National Institute of Nursing Research, Bringing Science to Life: NINR Strategic Plan, National Institutes of Health, Bethesda, Md, USA, 2011.
[8]
M. Rijken, M. Jones, M. Heijmans, et al., “Supporting self-management,” in Caring for People with Chronic Conditions: A Health System Perspective, E. Nolte and M. McKee, Eds., Open University Press, Berkshire, UK, 2008.
[9]
M. Grey, R. Whittemore, S. Jaser et al., “Effects of coping skills training in school-age children with type 1 diabetes,” Research in Nursing and Health, vol. 32, no. 4, pp. 405–418, 2009.
[10]
K. R. Lorig, P. L. Ritter, and V. M. González, “Hispanic chronic disease self-management: a randomized community-based outcome trial,” Nursing Research, vol. 52, no. 6, pp. 361–369, 2003.
[11]
M. Ersek, J. A. Turner, S. M. McCurry, L. Gibbons, and B. M. Kraybill, “Efficacy of a self-management group intervention for elderly persons with chronic pain,” The Clinical Journal of Pain, vol. 19, no. 3, pp. 156–167, 2003.
[12]
A. M. Berger, B. R. Kuhn, L. A. Farr et al., “Behavioral therapy intervention trial to improve sleep quality and cancer-related fatigue,” Psycho-Oncology, vol. 18, no. 6, pp. 634–646, 2009.
[13]
V. Menzies, A. G. Taylor, and C. Bourguignon, “Effects of guided imagery on outcomes of pain, functional status, and self-efficacy in persons diagnosed with fibromyalgia,” Journal of Alternative and Complementary Medicine, vol. 12, no. 1, pp. 23–30, 2006.
[14]
B. Riegel, D. K. Moser, S. D. Anker et al., “State of the science: promoting self-care in persons with heart failure: a scientific statement from the American Heart Association,” Circulation, vol. 120, no. 12, pp. 1141–1163, 2009.
[15]
C. W. Yancy, M. Jessup, B. Bozkurt , et al., “2013 ACCF/AHA guideline for the management of heart failure: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines,” Journal of the American College of Cardiology. In press.
[16]
R. Whittemore and K. Knafl, “The integrative review: updated methodology,” Journal of Advanced Nursing, vol. 52, no. 5, pp. 546–553, 2005.
[17]
World Health Organization, Cardiovascular Disease, 2009.
[18]
N. M. Albert, R. Buchsbaum, and J. Li, “Randomized study of the effect of video education on heart failure healthcare utilization, symptoms, and self-care behaviors,” Patient Education and Counseling, vol. 69, no. 1–3, pp. 129–139, 2007.
[19]
N. T. Artinian, J. K. Harden, M. W. Kronenberg et al., “Pilot study of a Web-based compliance monitoring device for patients with congestive heart failure,” Heart & Lung, vol. 32, no. 4, pp. 226–233, 2003.
[20]
S. Barnason, L. Zimmerman, J. Nieveen, and M. Hertzog, “Impact of a telehealth intervention to augment home health care on functional and recovery outcomes of elderly patients undergoing coronary artery bypass grafting,” Heart & Lung, vol. 35, no. 4, pp. 225–233, 2006.
[21]
S. Barnason, L. Zimmerman, P. Schulz, and C. Tu, “Influence of an early recovery telehealth intervention on physical activity and functioning after coronary artery bypass surgery among older adults with high disease burden,” Heart & Lung, vol. 38, no. 6, pp. 459–468, 2009.
[22]
A. F. Brandon, J. B. Schuessler, K. J. Ellison, and R. B. Lazenby, “The effects of an advanced practice nurse led telephone intervention on outcomes of patients with heart failure,” Applied Nursing Research, vol. 22, no. 4, pp. e1–e7, 2009.
[23]
M. A. Caldwell, K. J. Peters, and K. A. Dracup, “A simplified education program improves knowledge, self-care behavior, and disease severity in heart failure patients in rural settings,” The American Heart Journal, vol. 150, no. 5, pp. 983.e7–983.e12, 2005.
[24]
R. F. DeBusk, N. H. Miller, K. M. Parker et al., “Care management for low-risk patients with heart failure: a randomized, controlled trial,” Annals of Internal Medicine, vol. 141, no. 8, pp. 606–613, 2004.
[25]
C. M. Dougherty, E. A. Thompson, and F. M. Lewis, “Long-term outcomes of a telephone intervention after an ICD,” Pacing and Clinical Electrophysiology, vol. 28, no. 11, pp. 1157–1167, 2005.
[26]
R. Gallagher, S. McKinley, and K. Dracup, “Effects of a telephone counseling intervention on psychosocial adjustment in women following a cardiac event,” Heart & Lung, vol. 32, no. 2, pp. 79–87, 2003.
[27]
K. A. Gould, “A randomized controlled trial of a discharge nursing intervention to promote self-regulation of care for early discharge interventional cardiology patients,” Dimensions of Critical Care Nursing, vol. 30, no. 2, pp. 117–125, 2011.
[28]
M. B. Harrison, G. B. Browne, J. Roberts, P. Tugwell, A. Gafni, and I. D. Graham, “Quality of life of individuals with heart failure: a randomized trial of the effectiveness of two models of hospital-to-home transition,” Medical Care, vol. 40, no. 4, pp. 271–282, 2002.
[29]
M. Holmes-Rovner, M. Stommel, W. Corser et al., “Does outpatient telephone coaching add to hospital quality improvement following hospitalization for acute coronary syndrome?” Journal of General Internal Medicine, vol. 23, no. 9, pp. 1464–1470, 2008.
[30]
T. Jaarsma, R. Halfens, F. Tan, H. H. Abu-Saad, K. Dracup, and J. Diederiks, “Self-care and quality of life in patients with advanced hearth failure: the effect of a supportive educational intervention,” Heart & Lung, vol. 29, no. 5, pp. 319–330, 2000.
[31]
J. Kutzleb and D. Reiner, “The impact of nurse-directed patient education on quality of life and functional capacity in people with heart failure,” Journal of the American Academy of Nurse Practitioners, vol. 18, no. 3, pp. 116–123, 2006.
[32]
L. M. LaFramboise, C. M. Todero, L. Zimmerman, and S. Agrawal, “Comparison of health buddy with traditional approaches to heart failure management,” Family & Community Health, vol. 26, no. 4, pp. 275–288, 2003.
[33]
B. Maric, A. Kaan, Y. Araki, A. Ignaszewski, and S. A. Lear, “The use of the internet to remotely monitor patients with heart failure,” Telemedicine and e-Health, vol. 16, no. 1, pp. 26–33, 2010.
[34]
J. M?rtensson, A. Str?mberg, U. Dahlstr?m, J. E. Karlsson, and B. Fridlund, “Patients with heart failure in primary health care: effects of a nurse-led intervention on health-related quality of life and depression,” European Journal of Heart Failure, vol. 7, no. 3, pp. 393–403, 2005.
[35]
S. McKinley, K. Dracup, D. K. Moser et al., “The effect of a short one-on-one nursing intervention on knowledge, attitudes and beliefs related to response to acute coronary syndrome in people with coronary heart disease: a randomized controlled trial,” International Journal of Nursing Studies, vol. 46, no. 8, pp. 1037–1046, 2009.
[36]
H. Otsu and M. Moriyama, “Effectiveness of an educational self-management program for outpatients with chronic heart failure,” Japan Journal of Nursing Science, vol. 8, no. 2, pp. 140–152, 2011.
[37]
V. Paradis, S. Cossette, N. Frasure-Smith, S. Heppell, and M.-C. Guertin, “The efficacy of a motivational nursing intervention based on the stages of change on self-care in heart failure patients,” Journal of Cardiovascular Nursing, vol. 25, no. 2, pp. 130–141, 2010.
[38]
M. A. Prasun, A. G. Kocheril, P. H. Klass, S. H. Dunlap, and M. R. Piano, “The effects of a sliding scale diuretic titration protocol in patients with heart failure,” The Journal of Cardiovascular Nursing, vol. 20, no. 1, pp. 62–70, 2005.
[39]
B. Riegel, B. Carlson, D. Glaser, and T. Romero, “Randomized controlled trial of telephone case management in hispanics of Mexican origin with heart failure,” Journal of Cardiac Failure, vol. 12, no. 3, pp. 211–219, 2006.
[40]
L. D. Scott, K. Setter-Kline, and A. S. Britton, “The effects of nursing interventions to enhance mental health and quality of life among individuals with heart failure,” Applied Nursing Research, vol. 17, no. 4, pp. 248–256, 2004.
[41]
K. A. Sethares and K. Elliott, “The effect of a tailored message intervention on heart failure readmission rates, quality of life, and benefit and barrier beliefs in persons with heart failure,” Heart & Lung, vol. 33, no. 4, pp. 249–260, 2004.
[42]
N. B. C. Shearer, N. Cisar, and E. A. Greenberg, “A telephone-delivered empowerment intervention with patients diagnosed with heart failure,” Heart & Lung, vol. 36, no. 3, pp. 159–169, 2007.
[43]
M. Shively, M. Kodiath, T. L. Smith et al., “Effect of behavioral management on quality of life in mild heart failure: a randomized controlled trial,” Patient Education and Counseling, vol. 58, no. 1, pp. 27–34, 2005.
[44]
E. S. T. F. Smeulders, J. C. M. van Haastregt, T. Ambergen et al., “Nurse-led self-management group programme for patients with congestive heart failure: randomized controlled trial,” Journal of Advanced Nursing, vol. 66, no. 7, pp. 1487–1499, 2010.
[45]
B. G. M. Sol, Y. van der Graaf, B. Brouwer, S. M. C. Hickox, and F. L. J. Visseren, “The effect of a self-management intervention to reduce vascular risk factors in patients with manifestations of vascular diseases,” European Journal of Cardiovascular Nursing, vol. 9, no. 2, pp. 132–139, 2010.
[46]
C. Westlake, L. S. Evangelista, A. Str?mberg, A. Ter-Galstanyan, S. Vazirani, and K. Dracup, “Evaluation of a Web-based education and counseling pilot program for older heart failure patients,” Progress in Cardiovascular Nursing, vol. 22, no. 1, pp. 20–26, 2007.
[47]
A. Str?mberg, J. M?rtensson, B. Fridlund, L.-?. Levin, J.-E. Karlsson, and U. Dahlstr?m, “Nurse-led heart failure clinics improve survival and self-care behaviour in patients with heart failure: results from a prospective, randomised trial,” European Heart Journal, vol. 24, no. 11, pp. 1014–1023, 2003.
[48]
A. Str?mberg, U. Dahlstr?m, and B. Fridlund, “Computer-based education for patients with chronic heart failure. A randomised, controlled, multicentre trial of the effects on knowledge, compliance and quality of life,” Patient Education and Counseling, vol. 64, no. 1–3, pp. 128–135, 2006.
[49]
S. Tonstad, C. S. Alm, and E. Sandvik, “Effect of nurse counselling on metabolic risk factors in patients with mild hypertension: a randomised controlled trial,” European Journal of Cardiovascular Nursing, vol. 6, no. 2, pp. 160–164, 2007.
[50]
R. S. Stafford and K. Berra, “Critical factors in case management: practical lessons from a cardiac case management program,” Disease Management, vol. 10, no. 4, pp. 197–207, 2007.
[51]
N. Enc, Z. Yigit, and M. G. Altiok, “Effects of education on self-care behaviour and quality of life in patients with chronic heart failure,” Connect: The World of Critical Care Nursing, vol. 7, no. 2, pp. 115–121, 2010.
[52]
J. Ware, M. Kosinski, B. Gandek, et al., SF-36 Health Survey: Manual and Interpretation Guide, Health Institute, New England Medical Center, Boston, Mass, USA, 1994.
[53]
B. Middel, J. Bouma, M. de Jongste et al., “Psychometric properties of the Minnesota Living with Heart Failure Questionnaire (MLHF-Q),” Clinical Rehabilitation, vol. 15, no. 5, pp. 489–500, 2001.
[54]
T. Dixon, L. Lim, and N. B. Oldridge, “The MacNew heart disease health-related quality of life instrument: reference data for users,” Quality of Life Research, vol. 11, no. 2, pp. 173–183, 2002.
[55]
R. T. Tsuyuki, R. S. McKelvie, J. M. O. Arnold et al., “Acute precipitants of congestive heart failure exacerbations,” Archives of Internal Medicine, vol. 161, no. 19, pp. 2337–2342, 2001.
[56]
C. S. Lee, N. C. Tkacs, and B. Riegel, “The influence of heart failure self-care on health outcomes: hypothetical cardioprotective mechanisms,” Journal of Cardiovascular Nursing, vol. 24, no. 3, pp. 179–187, 2009.
[57]
S. Barnason, L. Zimmerman, and L. Young, “An integrative review of interventions promoting self-care of patients with heart failure,” Journal of Clinical Nursing, vol. 21, no. 3-4, pp. 448–475, 2012.
[58]
M. Boyde, C. Turner, D. R. Thompson, and S. Stewart, “Educational interventions for patients with heart failure: a systematic review of randomized controlled trials,” Journal of Cardiovascular Nursing, vol. 26, no. 4, pp. E27–E35, 2011.
[59]
W. D. Hall, “Representation of blacks, women, and the very elderly (aged ≥80) in 28 major randomized clinical trials,” Ethnicity and Disease, vol. 9, no. 3, pp. 333–340, 1999.
[60]
A. Heiat, C. P. Gross, and H. M. Krumholz, “Representation of the elderly, women, and minorities in heart failure clinical trials,” Archives of Internal Medicine, vol. 162, no. 15, pp. 1682–1688, 2002.
[61]
A. K. Yancey, A. N. Ortega, and S. K. Kumanyika, “Effective recruitment and retention of minority research participants,” Annual Review of Public Health, vol. 27, pp. 1–28, 2006.
[62]
R. G. Victor, J. E. Ravenell, A. Freeman et al., “A barber-based intervention for hypertension in African American men: design of a group randomized trial,” American Heart Journal, vol. 157, no. 1, pp. 30–36, 2009.
[63]
K. Newlin, S. M. Dyess, E. Allard, S. Chase, and G. D. M. Gail D'Eramo Melkus, “A methodological review of faith-based health promotion literature: advancing the science to expand delivery of diabetes education to Black Americans,” Journal of Religion and Health, vol. 51, no. 4, pp. 1075–1097, 2012.
[64]
U.S. Department of Health and Human Services, HHS Action Plan to Reduce Racial and Ethnic Disparities: A Nation Free of Disparities in Health and Health Care, U.S. Department of Health and Human Services, Washington, DC, USA, 2011.
[65]
S. Nolte and R. Osborne, “A systematic review of outcomes of chronic disease self-management interventions,” Quality of Life Research, vol. 22, no. 7, pp. 1805–1813, 2013.
[66]
J. Barlow, C. Wright, J. Sheasby, A. Turner, and J. Hainsworth, “Self-management approaches for people with chronic conditions: a review,” Patient Education and Counseling, vol. 48, no. 2, pp. 177–187, 2002.
[67]
D. Cella, S. Yount, N. Rothrock et al., “The patient-reported outcomes measurement information system (PROMIS): progress of an NIH roadmap cooperative group during its first two years,” Medical Care, vol. 45, supplement 1, no. 5, pp. S3–S11, 2007.
[68]
S. Newman, K. Mulligan, and L. Steed, “Self-management interventions for chronic illness,” The Lancet, vol. 364, no. 9444, pp. 1523–1537, 2004.
[69]
B. Riegel and V. V. Dickson, “A situation-specific theory of heart failure self-care,” Journal of Cardiovascular Nursing, vol. 23, no. 3, pp. 190–196, 2008.
[70]
S. A. Brown, “Meta-analysis of diabetes patient education research: variations in intervention effects across studies,” Research in Nursing & Health, vol. 15, no. 6, pp. 409–419, 1992.
[71]
J. Chodosh, S. C. Morton, W. Mojica et al., “Meta-analysis: chronic disease self-management programs for older adults,” Annals of Internal Medicine, vol. 143, no. 6, pp. 427–438, 2005.
[72]
D. Schillinger, F. Wang, M. Handley, and H. Hammer, “Effects of self-management support on structure, process, and outcomes among vulnerable patients with diabetes,” Diabetes Care, vol. 32, no. 4, pp. 559–566, 2009.
[73]
B. Riegel, V. V. Dickson, L. Hoke, J. P. McMahon, B. F. Reis, and S. Sayers, “A motivational counseling approach to improving heart failure self-care: mechanisms of effectiveness,” Journal of Cardiovascular Nursing, vol. 21, no. 3, pp. 232–241, 2006.