Self-management of diabetes is challenging, especially for adolescents who face multiple changes, including closer peer relationships. Few studies have explored how friends can provide constructive support in this effort. The present research investigated, in two qualitative studies, the perceptions of adolescents with diabetes and their friends with respect to the positive social support that friends can offer. In study 1, 28 adolescents aged 12–15 with type 1 diabetes participated in online focus groups. In study 2, 11 of these adolescents were interviewed in person together with their best friends. The data were analysed by means of content analysis. In study 1, the adolescents with diabetes identified various supportive behaviours of friends, particularly concerning emotional support: treating them normally, showing interest, having fun, providing a distraction, and taking their diabetes into account. They differed in their attitude towards support, and this influenced which behaviours they perceived as supportive. Study 2 showed that the adolescents with diabetes and their friends often had similar opinions on the desired degree of support. Fear of stigmatization and sense of autonomy withheld some adolescents with diabetes from soliciting more support. These insights can be useful in patient education aiming to promote social support. 1. Introduction Type 1 diabetes is a chronic illness requiring an intensive and challenging self-management regimen. This includes daily insulin injections, frequent blood glucose tests, close monitoring of food intake, and regular exercise [1]. Compared to younger children and adults with diabetes, adolescents with diabetes have been found to show poorer self-management behaviours [2] and poorer metabolic control [3, 4]. This is associated with developments characteristic of the teenage years: adolescents are becoming more independent of their parents, taking increasing responsibility for their diabetes management, and developing closer relationships with their peers [5, 6]. With regard to the latter, adolescents’ desire to be accepted by their peer group can lead to poorer diabetes self-management [7]. However, greater attention has recently been paid to the role of friends as a source of positive social support in coping with diabetes [5, 8, 9]. For instance, a review tentatively concluded that social support from friends seems to have a positive influence on the self-management behaviours of adolescents with diabetes [9]. Social support can be defined as interactions between people which meet the needs of the
References
[1]
R. E. Glasgow, E. B. Fisher, B. J. Anderson et al., “Behavioral science in diabetes: contributions and opportunities,” Diabetes Care, vol. 22, no. 5, pp. 832–843, 1999.
[2]
B. J. Anderson, W. F. Auslander, K. C. Jung, J. P. Miller, and J. V. Santiago, “Assessing family sharing of diabetes responsibilities,” Journal of Pediatric Psychology, vol. 15, no. 4, pp. 477–492, 1990.
[3]
A. D. Morris, D. I. R. Boyle, A. D. McMahon, S. A. Greene, T. M. MacDonald, and R. W. Newton, “Adherence to insulin treatment, glycaemic control, and ketoacidosis in insulin-dependent diabetes mellitus,” The Lancet, vol. 350, no. 9090, pp. 1505–1510, 1997.
[4]
M. Kovacs, R. E. Kass, T. M. Schnell, D. Goldston, and J. Marsh, “Family functioning and metabolic control of school-aged children with IDDM,” Diabetes Care, vol. 12, no. 6, pp. 409–414, 1989.
[5]
T. E. Burroughs, M. A. Harris, S. L. Pontious, and J. V. Santiago, “Research on social support in adolescents with IDDM: a critical review,” Diabetes Educator, vol. 23, no. 4, pp. 439–448, 1997.
[6]
G. N. Holmbeck, “A developmental perspective on adolescent health and illness: an introduction to the special issues,” Journal of Pediatric Psychology, vol. 27, no. 5, pp. 409–416, 2002.
[7]
A. M. Thomas, L. Peterson, and D. Goldstein, “Problem solving and diabetes regimen adherence by children and adolescents with IDDM in social pressure situations: a reflection of normal development,” Journal of Pediatric Psychology, vol. 22, no. 4, pp. 541–561, 1997.
[8]
D. K. Palladino and V. S. Helgeson, “Friends or foes? A review of peer influence on self-care and glycemic control in adolescents with type 1 diabetes,” Journal of Pediatric Psychology, vol. 37, pp. 591–603, 2012.
[9]
T. Wysocki and P. Greco, “Social support and diabetes management in childhood and adolescence: influence of parents and friends,” Current Diabetes Reports, vol. 6, no. 2, pp. 117–122, 2006.
[10]
B. E. Hogan, W. Linden, and B. Najarian, “Social support interventions: do they work?” Clinical Psychology Review, vol. 22, no. 3, pp. 381–440, 2002.
[11]
K. J. Bearman and A. M. La Greca, “Assessing friend support of adolescents' diabetes care: the diabetes social support questionnaire-friends version,” Journal of Pediatric Psychology, vol. 27, no. 5, pp. 417–428, 2002.
[12]
A. M. La Greca, W. F. Auslander, P. Greco, D. Spetter, E. B. Fisher Jr., and J. V. Santiago, “I get by with a little help from my family and friends: adolescents' support for diabetes care,” Journal of Pediatric Psychology, vol. 20, no. 4, pp. 449–476, 1995.
[13]
T. C. Skinner, M. John, and S. E. Hampson, “Social support and personal models of diabetes as predictors of self- care and well-being: a longitudinal study of adolescents with diabetes,” Journal of Pediatric Psychology, vol. 25, no. 4, pp. 257–267, 2000.
[14]
H. Kyng?s, M. Hentinen, and J. H. Barlow, “Adolescents' perceptions of physicians, nurses, parents and friends: help or hindrance in compliance with diabetes self-care?” Journal of Advanced Nursing, vol. 27, no. 4, pp. 760–769, 1998.
[15]
F. Wester and V. Peters, Kwalitatieve Analyse: Uitgangspunten en Procedures, Qualitative Analysis: Principles and Procedures, Coutinho, Bussum, The Netherlands, 2004.
[16]
D. Snape and L. Spencer, “The foundations of qualitative research,” in Qualitative Research Practice: A Guide for Social Science Students and Researchers, J. Ritchie and J. Lewis, Eds., pp. 1–23, Sage, London, UK, 2003.
[17]
R. A. Krueger and M. A. Casey, Focus Groups: A Practical Guide for Applied Research, Sage, Thousand Oaks, Calif, USA, 3rd edition, 2000.
[18]
C. Williams, “Gender, adolescence and the management of diabetes,” Journal of Advanced Nursing, vol. 30, no. 5, pp. 1160–1166, 1999.
[19]
F. E. Fox, M. Morris, and N. Rumsey, “Doing synchronous online focus groups with young people: methodological reflections,” Qualitative Health Research, vol. 17, no. 4, pp. 539–547, 2007.
[20]
G. Dovey-Pearce, Y. Doherty, and C. May, “The influence of diabetes upon adolescent and young adult development: a qualitative study,” British Journal of Health Psychology, vol. 12, no. 1, pp. 75–91, 2007.
[21]
A. Karlsson, M. Arman, and K. Wikblad, “Teenagers with type 1 diabetes—a phenomenological study of the transition towards autonomy in self-management,” International Journal of Nursing Studies, vol. 45, no. 4, pp. 562–570, 2008.
[22]
M. H. Buchbinder, M. J. Detzer, R. L. Welsch, A. S. Christiano, J. L. Patashnick, and M. Rich, “Assessing adolescents with insulin-dependent diabetes mellitus: a multiple perspective pilot study using visual illness narratives and interviews,” Journal of Adolescent Health, vol. 36, no. 1, pp. 71.e9–71.e13, 2005.
[23]
M. Rewers, C. Pihoker, K. Donaghue, R. Hanas, P. Swift, and G. J. Klingensmith, “Assessment and monitoring of glycemic control in children and adolescents with diabetes,” Pediatric Diabetes, vol. 8, no. 6, pp. 408–418, 2007.
[24]
E.-O. Im and W. Chee, “An online forum as a qualitative research method: practical issues,” Nursing Research, vol. 55, no. 4, pp. 267–273, 2006.
[25]
R. S. Cook and S. Rule, “When face to face won’t work: internet-based focus groups,” in Proceedings of the Growing Partnerships for Rural Special Education Conference, San Diego, Calif, USA, March 2001.
[26]
P. Greco, J. S. Pendley, K. McDonell, and G. Reeves, “A peer group intervention for adolescents with type 1 diabetes and their best friends,” Journal of Pediatric Psychology, vol. 26, no. 8, pp. 485–490, 2001.