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- 2019
International Comparison of Thalassemia Registries: Challenges and OpportunitiesDOI: 10.5455/aim.2019.27.58-63 Keywords: Thalassemia, Hemoglobinopathy, Surveillance, Registry, Database Abstract: Patient registries use standardized methods to systematically gather uniform data for specific groups of patients managed in clinical practice to evaluate specified outcomes
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