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-  2018 

Experiences and perspectives on the return of secondary findings among genetic epidemiologists

DOI: https://doi.org/10.1038/s41436-018-0369-x

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Abstract:

While there has been a recent increase in scholarship around developing policies for the return of results from genetic sequencing, it is not clear whether these approaches are appropriate for genetic epidemiology studies. Because genetic epidemiological research increasingly utilizes genome sequencing methods, particularly in large data sets where researchers did not directly ascertain the subjects, it is important to understand researchers’ perspectives on the return of results

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